Posted 7/22/2018 11:07 AM (GMT -7)
I haven't posted in a while ... I have been undergoing treatment with a different LLMD practice and hoping to see some progress. One thing that has concerned me recently is that, in the past month or so, I can see my fingers swelling slightly. It's not the joints, but rather the rest of the fingers. When I press on the skin, a dent remains for a little while. Has anyone else experienced this with Lyme? If so, did it improve with treatment?
So far, the swelling is not that obvious to the eye (although I can definitely see a difference), but I think it's slowly but surely getting worse. I worry that if it doesn't stop, it's going to be full-blown dactylitis (sausage fingers).
In combination with the joint pain I feel in my fingers, this makes me nervous. As I've posted before, I have a nagging fear that my symptoms, which are sort of classic autoimmune symptoms (dry eyes/mouth, joint pain) reflect an actual autoimmune disorder rather than merely Lyme. Possibilities that my rheumatologist has floated in the past include Sjogren's Syndrome, rheumatoid arthritis, or even psoriatic arthritis. (Though I have no skin symptoms, my symptoms otherwise seem to line up uncomfortably well with psoriatic arthritis -- the pattern of joint pain (involving the DIP joints of the fingers), the lack of obvious blood markers, and now the swelling fingers. I'm really afraid of a diagnosis like this -- my boss has psoriatic arthritis and suffers terribly from it.)
My symptoms (joint pain, dry eyes/mouth) have gotten somewhat worse since starting the most recent round of treatment (but the LLMD says it doesn't really fit the pattern of a herx or what they call "blebbing.") So I sometimes worry about whether I'd doing the right thing, pursuing Lyme treatment rather than letting my rheumatologist put me on heavy autoimmune medications.
I really appreciate any comments or thoughts!
Started herbal treatment for Lyme in early 2017. Did 1 month of doxy Aug. 2017; started doxy again Jan. 2018. Uncertain about diagnosis b/c tests have been iffy, and my symptoms (dry eyes/mouth, finger joint pain/swelling) look like classic autoimmune issues. Different tests at different times have shown Lyme, babesia, bartonella, ehrlichia -- most recent tests show only Lyme (IgM bands only).