I was misdiagnosed for 5 years. Since having been found to have bartonella i did 8 months on Buhner herbs with no change and am now on abx for 5 months but also no change. My current doc believes i have mast cell activation and i believe he's right, but also 5 months of heavy antihistamines and low histamine intake, still no change.
I just crossed 7 years and that is weighing on me considering I've had zero improvement. The depersonalization/derealization and psychosis are so thick, i would crawl through Ramadi for a cure
What does Dr. M. say about
the lack of change with abx and mast cell treatment?
You have had MRI's or brain scans before, right? Did they reveal any "permanent" damage or specific cause?Dr M says there is a stronger bartonella and mast cell protocol. He switches rifampin for rifabutin and for mast cells its ritalin, dexamethosone and something else i can't remember. I see him in 2 weeks and know im going on the rifabutin but im not sure about
the mast cell treatment
Yes, I've had several MRIs and an MRA, all of which came back normal. However, my EEGs showed slowing and my SPECT showed a lot of hypoperfusion on both sides of the cerebal cortex. My SPECT has been the best test ive done as it actually shows something that would cause such intense psych symptoms
I sure hope this next protocol starts to tap into something, after 7 years im utterly exhausted of thisAre you taking biaxin with the Rifabutin? ...and are you seeing the Dr. M from Galaxy Labs?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi