Sebreg's experience with the doctor at Mayo reminds me of some of my own. In my case, neither Lyme nor infectious disease was talked about
, as I did not know yet that I had Lyme. Yet, the responses and reactions from the doctors shocked or baffled me.
When my Lyme symptoms got really bad, I also stopped having regular periods and thought my hormones were causing my symptoms. I had already seen my OB/GYN, who was a real jerk, and my PCP who just told me he didn't think menopause was causing the symptoms I was having. At my wit's end, I decided to visit a lady GYN who specialized in menopause and was a little outside the box, I thought.
She was awful. When I tried to tell her the kind of symptoms I was having and how it coincided with my periods becoming irregular, she cut me off and got all flustered with me and said my hormones had nothing to do with all that. She then put in a referral to a rheumy, I guess because joint stiffness was one of the many symptoms I mentioned. She didn't ask my permission to refer me. I refused to see the rheumy. I'd already seen one at Mayo.
The way she treated me felt incredibly demeaning and disrespectful. I was already having cognitive and word finding difficulties and anxiety. After she cut me off, she basically started berating me. I zoned out sitting on the table and left in a stunned daze to go back to work. It's funny because I know other people who really like this doctor. That was the last conventional doctor I saw.
I had never been treated that poorly by a doctor before. I had also never been sicker. That wasn't the only bad experience I've ever had, but it was the most demeaning. I pretty much turned against the whole medical system at that point. I had already been sick for 6 years and no doctor I tried to talk to about
my symptoms was any different from the other, regardless of specialty. They were all cut out of the same mold. It made no sense to me and still doesn't. Even now, with semi Lyme/mold literate alternative doctors, I question everything they tell me. They all believe different things, so how in the world can they all be right? They're not.
I trust my instincts more than I trust their "knowledge." Most of them seem shallow and superficial in their level of knowledge. All they're doing is following somebody else's protocol, and I don't fit the mold.
What I do know is that I know the truth when I hear it. I'm still waiting to hear it from a doctor, so I keep looking for the truth everywhere. I guess I'm rambling now. I'll stop.
Post Edited (WalkingbyFaith) : 8/5/2018 8:53:30 PM (GMT-6)