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Anyone has has multiple tendón pain by fluoroquinolones?

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LymeWarrior!
Veteran Member
Joined : Dec 2017
Posts : 937
Posted 8/6/2018 1:48 PM (GMT -6)
Anyone has has multiple tendón pain by fluoroquinolones an recovered? All my body hurts.

I need hear your experiences.
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Girlie
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Joined : May 2014
Posts : 44551
Posted 8/6/2018 2:55 PM (GMT -6)
My MIL had a tendon in her right bicep rupture and 'curl up' - but she didn't get it repaired.

We didn't know at the time it was due to the fluoroquinolones...we now think it was the case...as at the time she had been on repeated rounds of Cipro for a recurring UTI.

I doubt if it's coincidence.

After the initial rupture...she didn't have anymore pain...just weakness in that arm.

She wasn't treating for lyme.

I don't know if she had any other tendon pain at the time.
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opugirl
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Posted 8/7/2018 10:35 AM (GMT -6)
bump
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tickbite666
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Joined : Mar 2014
Posts : 2033
Posted 8/7/2018 11:12 AM (GMT -6)
I had my right Achilles tendon tighten up after only 19 days on Levaquin. I had known the risks and stopped immediately. It gradually improved, but took almost a year to return to normal. Six moths after the Levaquin reaction I tried Cipro and took it almost a year with no side effects.

I'm back treating bart yet again and would consider another try with Levaquin if this current Rif and Biaxin combo doesn't work.
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Rikky1
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Joined : Jun 2015
Posts : 3153
Posted 8/7/2018 11:15 AM (GMT -6)
tickbite why would you possibly want to try levaquin again if it took you 1 year for all the effects to subside?

there are other options for bart. you can do rifabutin or herbals instead of potentially destroying yourself with that class of drugs.

FYI 19 days on levaquin before impact to your tendons is a long time. it only took me 2 days and when i stopped it took about a week to get better.

can't believe this drug is even still legal.
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tickbite666
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Joined : Mar 2014
Posts : 2033
Posted 8/7/2018 11:33 AM (GMT -6)
I just ordered IHA blend from Woodland to replace my fresh leaf Hout. I'll give that a try first, Then maybe go back to CSA.

I don't see much of a difference between Rifampin and Rifabutin to switch for now. Other herbals and supps in my protocol are ACV, GSE, JK plus, Astragalus, monolaurin, ALA, Serrapeptase, and Milk Thistle.

As far as the Levaquin goes, maybe a 2 week on and two week off pulse would be worth a try. At 63 what do I have to loose? maybe early disability?
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LymeWarrior!
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Joined : Dec 2017
Posts : 937
Posted 8/7/2018 11:45 AM (GMT -6)
Is a good sign if tendon pain is intermitetlly? It fluctuates... Some momentos can walk normal bit then pain appear again.
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tickbite666
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Joined : Mar 2014
Posts : 2033
Posted 8/7/2018 12:08 PM (GMT -6)
I would say that fluctuating pain is better than pain from a steady contraction or tear. Sound more like a sx flare or herx rather than serious tendon damage. But worth monitoring very closely.
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LymeWarrior!
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Joined : Dec 2017
Posts : 937
Posted 8/7/2018 7:40 PM (GMT -6)
today pain is worse.... It's not a herx because it started after avelox and is specially in tendon. It should be better ot same level.... I would be the tyoicall floxed case that progress worse over time even after stopped abx
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LymeWarrior!
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Joined : Dec 2017
Posts : 937
Posted 8/7/2018 7:42 PM (GMT -6)
I've destroyed my life after three ****ing pills that didn't made any difference.... I never couldn't forgive myself
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LymeWarrior!
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Joined : Dec 2017
Posts : 937
Posted 8/7/2018 8:03 PM (GMT -6)
I can live with lyme but promised myself that not with lyme and chronic tendon problems by floxed (in the best of the cases if i not start to develop neurologicall problems, retinall atachment etc...)
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LymeWarrior!
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Joined : Dec 2017
Posts : 937
Posted 8/8/2018 8:13 AM (GMT -6)
Tickbite666 won't take it.... Todas i can't move my legs it feels they are going to break. They are not abx, they are poisons
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LymeWarrior!
Veteran Member
Joined : Dec 2017
Posts : 937
Posted 8/8/2018 2:21 PM (GMT -6)
There is a high risk to have aortica aneurysm... Maybe because degradation of collagen...

I've been talking with a pharmacist and his wife and daughter rupture achilles tendon... 7 months after discontinuation. The risk is not as los as 1%... Maybe 50% or higher... It's stadistically imposible that if it's 1% two personas in the same familly experience the same....

I'm preparing myself for the worst scenario. multiple tendon pain... can not have a happy end.

They are chemoterapheutic drugs and we have to believe more patients.

A horowitz's patient was floxed and his team doscharged him without any solution. Only an antifloxed suplements that cost her 70% and did nothing.
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LymeWarrior!
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Joined : Dec 2017
Posts : 937
Posted 8/8/2018 4:17 PM (GMT -6)
The rubbish feeling is a small fiber broken so that means all my body tendons are broken? Because i have this feeling in all my body.
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sebreg
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Posted 8/8/2018 6:00 PM (GMT -6)
Did you say you had moments where the pain was subsiding though? is the pain the same as the first days or is it sometimes easing up? If you get moments where it subsides a bit I'd take that as a good sign.
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LymeWarrior!
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Joined : Dec 2017
Posts : 937
Posted 8/8/2018 6:20 PM (GMT -6)
The pharmacist worried me more saying me that i can have heart attack months after discontinuation the drug, aortic aneurysm or múltiple tendon ruptures

It fluctuates sebreg but we can say it still here any moment
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bluelyme
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Joined : Nov 2015
Posts : 5883
Posted 8/8/2018 8:04 PM (GMT -6)
i re-itterate and highly suggest that if you value whats left of your physical shell that you seek some INTRAVENOUS therapies like high dose vitamin c and magnesium for tendon repair....u must get back in to tx eventually to not get worse ....better is even further down the road. keep us posted .my mild sjs was irreparable so i can sympathize with you and how you must feel....
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Girlie
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Joined : May 2014
Posts : 44551
Posted 8/8/2018 8:33 PM (GMT -6)

OriolCarol said...
The pharmacist worried me more saying me that i can have heart attack months after discontinuation the drug, aortic aneurysm or múltiple tendon ruptures

It fluctuates sebreg but we can say it still here any moment

Yes it can happen awhile after discontinuing but it is not 50% chance - that’s not true.
If half of Dr j’s patients were floxed - I’m pretty sure he wouldn’t be prescribing it.
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Girlie
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Joined : May 2014
Posts : 44551
Posted 8/8/2018 8:42 PM (GMT -6)

OriolCarol said...
There is a high risk to have aortica aneurysm... Maybe because degradation of collagen...

I've been talking with a pharmacist and his wife and daughter rupture achilles tendon... 7 months after discontinuation. The risk is not as los as 1%... Maybe 50% or higher... It's stadistically imposible that if it's 1% two personas in the same familly experience the same....

.

No It is not statistically impossible that two people in same family get floxed - if the risk is 1 %



..
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sebreg
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Joined : Jun 2015
Posts : 1925
Posted 8/8/2018 8:45 PM (GMT -6)
Bluelyme makes a great suggestion, if you can try getting some of those ivs. They could potentially really help you out right now.
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LymeWarrior!
Veteran Member
Joined : Dec 2017
Posts : 937
Posted 8/8/2018 10:18 PM (GMT -6)
I can walk but then suddenlly i have foto tendón pain or achilles tendon pain... Or i'm using whatssap without problem and after 30m i have severe tendinitis in my arm, after 15m subsside and like that all my body.

It feels like if my body would be trying to heal but there's something at the sale time that destroy it. Maybe permanent DNA damage to mitochindria?
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bluelyme
Veteran Member
Joined : Nov 2015
Posts : 5883
Posted 8/8/2018 10:36 PM (GMT -6)
iv glutithione 2g doses as many as you can afford!!!!!!!!....sorry man i did permanent nerve damage with bactrim ...its never coming back ....well maybe stems but those are pricey
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LymeWarrior!
Veteran Member
Joined : Dec 2017
Posts : 937
Posted 8/8/2018 11:24 PM (GMT -6)
I'll do it blulyme. Thank you

Do you think it's dose dependent? I mean if a person take one pill and is floxed is the sale that if you take 7 pills and then floxed?
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bluelyme
Veteran Member
Joined : Nov 2015
Posts : 5883
Posted 8/9/2018 9:29 AM (GMT -6)
Tootie pushed passed the tendonopathy ...he thinks its the level of b.l.o. infestation going inward ...
Fqs were developed from chemo . Flouride based maybe georgiahunter knows chem structure. ..and how to get out of body? . Bodily chemistry and gene expression we are barely beginning to grasp. Be glad you didnt continue to eat more .
Start with binders and mild chelaters ,antioxidants and liver support .add detox footbaths and saunas, bentonite baths and whatever else detoxes fast
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LymeWarrior!
Veteran Member
Joined : Dec 2017
Posts : 937
Posted 8/9/2018 3:48 PM (GMT -6)
I'm suffering a lot because now every symptom i have i attach it to fql.

I've read that can be a tendinitis of the eye, causing permanent vision loss and today my ejes were hurting. Or a dissection of tendons of the heart....
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