sebreg said...Oh, you have no idea how happy your reply made me! Thank you for caring. If you don't have time/energy for more, you can read only the parts highlighted but I hope someone is interested in this "whole story" aswell!I have not directly treated Babesia, but when I was at the clinic, the dr did try several different abx in order to see if anything happens but nothing happened. First he put me on Ceftriaxone and Biseptol but it was only for 11 days or so. He, along with other patients, said that Biseptol would hit the Babesia but I never felt it'd so simple...
It can take some months of treatment to feel improvement. Have you directly treated the babesia? Have you taken malarone/mepron or anti-babesia herbs (like cryptolepis)? those things seem like the most effective for targeting babesia. Personally, I'd want to try and knock back the babesia (especially since you tested positive for it), it was one of the primary causes of my chronic head pressure headaches.
I wouldn't put too much stock in the negative test results. If you tested positive once that is very good confirmation, especially when one also considers the symptoms you have. I'd keep trying to treat and seeing if you can reduce symptoms over time.
Most of my labs have always been normal. I did get a VEGF test and was high. I don't think being in the normal range excludes bartonella though... it's merely used as an indirect marker, it could be that bartonella is still involved, but maybe it isn't your primary infection. Pure speculation on my part!
From what I recall treatments for mycoplasma are usually broad coverage, so I think when one treats for lyme/bartonella those meds will usually also hit mycoplasma.
Then later (after supportive IVs like glutathione, vit. C, B-complex... after/during which I also didn't feel anything special) he decided to try a different route which was The Bartonella Route. He put me on Rifampin and later added Klarinomycin (not sure about
the international names?) and as I received those, I certainly didn't feel better nor developed any clear new symptoms - apart from non-itchy red "pimples" under my chin - but I indeed felt more discomfort in my eyes (if that's even possible) and quite confused, heavy and horrible... But not in any new way if you get what I mean. Also the weird buzzing nerve sensation that I have on my right hand spread to the left side.
I also tried hyperthermia during that combo and my eyes were hurting a lot after that... But that's it pretty much. Some normal headache also.
Then he tried Artesunat but only like two times or something. I was told that would hit the Babesia if the Biseptol didn't.
Then after some time we discontinued this protocol aswell since I didn't feel any clear changes. The dr wanted me to take the multiple Elispot-tests again to see if some infection has now raised its head more after the treatments and if the ones not-so-important would be subsided. I had still received abx on the day before the blood was drawn.
I waited for the results and to our great disappointment, they were all negative now. Before they were all positive. The dr seemed very anxious and he simply didn't know what to do with me apart from recommending new tests (e.g. these VEGF and MMP-9) to determine if I have some other problem after all, like something associated with toxins. Or maybe it's a virus although usually that's not the case.Soon however we found out I have Cpn (IgA and IgG high) and Mycoplasma (in the new Elispot it was however negative??) and that made him say to me: "We have a reason for your symptoms." Then he prescribed me a new plan consisting of Tetracycline, Azitromycin and pulses with Flagyl and Metro + some other stuff.Before finding the Cpn I asked for a Malarone prescription since I remembered many people here telling my case sounds like Babesia. And since I remembered him telling me sometimes Malarone is needed, sometimes abx won't do. I did get a prescription of 12 pills but I didn't buy them after all because he didn't recommend the trial with the new Cpn/Myko protocol and the pharmacy didn't have it when I asked and I had to travel to my home country the next morning. So yeah. I really would like to try Malarone more and more!!! Is a trial of 12 pills enough though?In addition to the constant 24/7 head pressure headache and head burning, I have lots of other symptoms aswell... E.g. chronic severe fatigue and weakness, light sensitivity in eyes, discomfort/achiness in eyes, horrible ear ringing and hyperacusis, bizzarre nerve sensations in certain parts of the body, feeling never refreshed, needing too much sleep, looking swollen, tender places everywhere, some neuropsychiatric things... Just to name a few. There are many labs that are wrong but those regarding the so-called general health they are perfect.