I know you've asked about cholestyramine before. Have you actually used it? I know the pure stuff is expensive, but that is definitely a stone you should not leave unturned IMO due to the past mold exposure and possible CIRS genetic factors.
Do you or have you used any other binders on a regular basis?
I haven't tried it, no one has ever prescribed it for me. A few of my doctors have suspected CIRS but they all get caught up when my c4a comes back normal. I also have the "post lyme" HLA type.
I have occasionally felt slightly better with bentonite clay but nothing major nor anything sustainingAerose,
Elevated C4a occurs with ongoing mold exposure, which you don't have. You have past exposure.
Your most serious symptoms are brain related, which is likely due to brain inflammation. Toxins of all sorts result in brain inflammation. Binders are necessary to remove the toxins. With impaired organs and detoxification, our bodies cannot sufficiently remove toxins.
Binders should be taken regularly. It seems best to use more than one or to rotate them. I encourage you to try at least 3 different ones and see which ones make the most difference for you. If you have mercury amalgams, do not take chlorella. Start at low doses and work your way up. Here are the ones I can think of.
Modified citrus pectin (Pectasol-C is one example)
Modified citrus pectin with alginate (Pectaclear is an example)
Zeolite (Zeobind by Biopure has been recommended by another member)
Diatomaceous earth (cuts up intestinal parasites = possible herx)
Jernigan's Neuro Antitox II CNS/PNS formula (especially for ammonia buildup, which Jernigan believes is a major cause of brain inflammation and neuro symptoms; this has been used and recommended by several members)
Based on your history and symptoms, my best guess is that Cholestyramine and Jernigan's Neuro Antitox II CNS/PNS are the most likely to have some affect on you. Binders are not very effective unless taken regularly, but I'm learning I need to take breaks periodically.
If you want to try cholestyramine, ask Dr. M for a prescript
Unfortunately, most of us still have to know more and push for more even with Lyme literate doctors.
Post Edited (WalkingbyFaith) : 8/16/2018 2:46:22 PM (GMT-6)