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Success with integrative medicine?

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Lyme Disease
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BuckeyeSDH
Regular Member
Joined : Jul 2018
Posts : 42
Posted 8/17/2018 7:02 AM (GMT -7)
Hi Everyone,

I just wanted to ask if anyone has had success working with an integrative medical practice or doctor in treating lyme? Specifically one who is not listed as an LLMD.

I am seeing an LLMD now, the only one I could find in my state and get an appointment in quickly, but I question some of her methods and her competence.

I have been looking into other options and I know integrative medicine combines western medicine with holistic more natural options. They treat the whole person, not just the symptoms. It seems many of them work with chronic illness, I just don't see lyme on most lists.

Has anyone worked with an integrative medical doctor/practice and had success, even if lyme is not mentioned on their site?
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k07
Veteran Member
Joined : Sep 2015
Posts : 3443
Posted 8/17/2018 7:29 AM (GMT -7)
What state? OH by chance?
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Psilociraptor
Veteran Member
Joined : Jul 2016
Posts : 1420
Posted 8/17/2018 7:41 AM (GMT -7)
No I haven't. It can be useful for some things but has its own limitations. I'm actually shadowing an integrative doctor right now and I've peeked at his textbooks in between patients. Interestingly some of them are fairly critical of chronic Lyme yet fairly supportive of homeopathy. Go figure. In my experiences as a patient I've often times just been sold a bunch of supplements that did nothing. Or diverted down unhelpful paths such as "toxic mold". But it really depends on the doctor. Many LLMD's are integrative doctors. Everyone has a different philosophy and part of the problem (and also benefit of it) is that these philosophies and approaches are not homogenized and standardized. So you very may well find someone who treats you the way you're looking to be treated, or someone who loads you up on unhelpful supplements. Just depends.
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BuckeyeSDH
Regular Member
Joined : Jul 2018
Posts : 42
Posted 8/17/2018 9:24 AM (GMT -7)

k07 said...
What state? OH by chance?

Yes, I am located in Ohio smile
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BuckeyeSDH
Regular Member
Joined : Jul 2018
Posts : 42
Posted 8/17/2018 9:28 AM (GMT -7)

Psilociraptor said...
No I haven't. It can be useful for some things but has its own limitations. I'm actually shadowing an integrative doctor right now and I've peeked at his textbooks in between patients. Interestingly some of them are fairly critical of chronic Lyme yet fairly supportive of homeopathy. Go figure. In my experiences as a patient I've often times just been sold a bunch of supplements that did nothing. Or diverted down unhelpful paths such as "toxic mold". But it really depends on the doctor. Many LLMD's are integrative doctors. Everyone has a different philosophy and part of the problem (and also benefit of it) is that these philosophies and approaches are not homogenized and standardized. So you very may well find someone who treats you the way you're looking to be treated, or someone who loads you up on unhelpful supplements. Just depends.

This was helpful and good to know! I am trying to find the best treatment plan for me. I will have been on 8 weeks of antibiotics at the end of this month and just feel I have more symptoms from those then I do lyme itself. I do believe in pharmaceutical medicine as a treatment option, I just want less of it and more options to boost my immune system with natural substances as my symptoms are not debilitating or severe (at this time). If only the medical community would catch up to the times on lyme disease!
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bluelyme
Veteran Member
Joined : Nov 2015
Posts : 5878
Posted 8/17/2018 11:26 AM (GMT -7)
The supportive ivs helped but not curative . I placed a port to make it less traumatic ....ozone saunas were brutal at first ...iv curcumin helped ...and i helped him buy a new Mercedes-Benz. He knew i had lyme but did not tell me as he thought i already knew ...his nurse did ...thank god
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1000Daisies
Veteran Member
Joined : Apr 2016
Posts : 3171
Posted 8/17/2018 11:49 AM (GMT -7)
I strongly believe in functional medicine, which looks at addressing the root cause of an issue.

I personally believe in integrative medicine, which for me means combining the best of both worlds to help us individually.

I have had epic failures in BOTH allopathic and alternative medicines/practitioners.

The practitioners who have been the most helpful to us personally are a functional medicine MD and a naturopath. Both have their limitations but also strengths.

I have seen plenty of truly terrible MDs (allopathic), as well as various alternative practitioners who were not helpful (and, at times, rather harmful and toxic).
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jrpsf
Veteran Member
Joined : Aug 2014
Posts : 1762
Posted 8/17/2018 12:24 PM (GMT -7)
I see a Lyme Literate Naturopathic doctor. In most states they are able to rx all meds but controlled substances. They also have a very broad knowledge of herbs and support supplements.
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Girlie
Forum Moderator
Joined : May 2014
Posts : 44373
Posted 8/17/2018 1:29 PM (GMT -7)

jrpsf said...
I see a Lyme Literate Naturopathic doctor. In most states they are able to rx all meds but controlled substances. They also have a very broad knowledge of herbs and support supplements.

Can they prescribe Mepron/malarone?


That was the issue with my LLND. (in BC, Canada)
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jrpsf
Veteran Member
Joined : Aug 2014
Posts : 1762
Posted 8/17/2018 2:08 PM (GMT -7)

Girlie said...

jrpsf said...
I see a Lyme Literate Naturopathic doctor. In most states they are able to rx all meds but controlled substances. They also have a very broad knowledge of herbs and support supplements.

Can they prescribe Mepron/malarone?


That was the issue with my LLND. (in BC, Canada)


I'm on Mepron now. I don't know if that's just California or not.
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bluelyme
Veteran Member
Joined : Nov 2015
Posts : 5878
Posted 8/18/2018 1:55 AM (GMT -7)
Integrated ducs may look at things like clifford test ,4 pt adrenal, stool test , mineral balance ,emotional spiritual and structual health, methylation, sulferatuon ,ammonia and comt genes , they may have frequency medicine and or iv protocols like patricia kane ,uvb ,mah with ozone , mine has a compounding pham on site and lymph specialist and 2 apitherpists and a osteostrong ....

If they did script mepron i hope they would supp coq10 for the subsequent blues
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opugirl
Forum Moderator
Joined : Nov 2012
Posts : 3922
Posted 8/18/2018 6:04 AM (GMT -7)
Yes, I vote yes to integrative medicine!

~beth
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k07
Veteran Member
Joined : Sep 2015
Posts : 3443
Posted 8/18/2018 7:04 AM (GMT -7)

BuckeyeSDH said...

k07 said...
What state? OH by chance?

Yes, I am located in Ohio smile

I’m near cinci. There’s 2 integrative practices here that treat lyme. One does mold as well. In my experience most integrative type docs are “lyme friendly” not necessarily lyme literate. I often know more than they do. That’s often an issue for me bc I lose trust. However, if they offer supportive treatment like iv’s, ozone, it may be worth it to try.
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Girlie
Forum Moderator
Joined : May 2014
Posts : 44373
Posted 8/18/2018 8:19 AM (GMT -7)

bluelyme said...
Integrated ducs may look at things like clifford test ,4 pt adrenal, stool test , mineral balance ,emotional spiritual and structual health, methylation, sulferatuon ,ammonia and comt genes , they may have frequency medicine and or iv protocols like patricia kane ,uvb ,mah with ozone , mine has a compounding pham on site and lymph specialist and 2 apitherpists and a osteostrong ....

If they did script mepron i hope they would supp coq10 for the subsequent blues

Even llmd’s want you taking coq10 with mepron - mine said on the days off to take it.
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bluelyme
Veteran Member
Joined : Nov 2015
Posts : 5878
Posted 8/18/2018 9:25 AM (GMT -7)
Girlie have you ever been to a functional or integrative duc? Are naturopaths the closest to up there..?
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Girlie
Forum Moderator
Joined : May 2014
Posts : 44373
Posted 8/18/2018 9:32 AM (GMT -7)

bluelyme said...
Girlie have you ever been to a functional or integrative duc? Are naturopaths the closest to up there..?

prior to diagnosis I saw three ND's.

My LL Dr. from Aug, 2014 to end of 2016 was a ND with prescribing rights.

Have not gone to a functional or integrative Doc.

Actually, I think there is one about 1 1/2 hours away - but he is $$$$ and has some pretty bad reviews.
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BuckeyeSDH
Regular Member
Joined : Jul 2018
Posts : 42
Posted 8/18/2018 10:04 AM (GMT -7)

k07 said...

BuckeyeSDH said...

k07 said...
What state? OH by chance?

Yes, I am located in Ohio smile

I’m near cinci. There’s 2 integrative practices here that treat lyme.

K07 - the LLMD I am seeing is actually in the Cinci area. Do you have experience with Dr. R?
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bluelyme
Veteran Member
Joined : Nov 2015
Posts : 5878
Posted 8/18/2018 1:43 PM (GMT -7)

BuckeyeSDH said...

k07 said...

BuckeyeSDH said...

k07 said...
What state? OH by chance?

Yes, I am located in Ohio smile

I’m near cinci. There’s 2 integrative practices here that treat lyme.

K07 - the LLMD I am seeing is actually in the Cinci area. Do you have experience with Dr. R?

i know reviews of ducs would be grand, but by calling these docs out it puts them , their staff and licensees at risk , a pm can be sent rather than discussing on a public forum, am i wrong? i suspect we have many trolls
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BuckeyeSDH
Regular Member
Joined : Jul 2018
Posts : 42
Posted 8/18/2018 2:04 PM (GMT -7)
K07 can certainly email with any feedback they may have. I have seen others post with doctor initials and locations so I apologize if I broke any rules. THe forum moderators can certainly delete or edit the post if so.
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Gianna
New Member
Joined : Aug 2018
Posts : 1
Posted 8/18/2018 2:28 PM (GMT -7)
Im working with an intgrative dr his fm nutritionist is treating me. She has me on 200mg doxy 2x a day. Its making me so sick.She said this would likely happen Herxxheimer. She also has me on some other tinctures for the detox and activated charcoal at night. 'fingers crssed I can kill this bug. Im new to lyme but Ive had lupus for the past 20 years so im really not too happy and a bit scared about this diagnosis
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Girlie
Forum Moderator
Joined : May 2014
Posts : 44373
Posted 8/18/2018 3:44 PM (GMT -7)
Hi Gianna, welcome to our community

Did you recently get a tick bite that you know of?


(I'm wondering if your Lupus diagnosis was actually lyme all along)
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k07
Veteran Member
Joined : Sep 2015
Posts : 3443
Posted 8/18/2018 5:11 PM (GMT -7)

BuckeyeSDH said...
K07 can certainly email with any feedback they may have. I have seen others post with doctor initials and locations so I apologize if I broke any rules. THe forum moderators can certainly delete or edit the post if so.

Initials are fine. I am not sure I know who dr. R is! I will enable my email so we can talk more.
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Rikky1
Veteran Member
Joined : Jun 2015
Posts : 3153
Posted 8/18/2018 5:52 PM (GMT -7)
i saw an integrative doctor and they did nothing but steal my money and lots of it! sure they knew a little about lyme and did some abx but it wasn't nearly enough to get me well. what they did a good job of is for me to take all sorts of high priced fancy supplements which were a waste of time.

some people rave about them but my wife and myself wasted our time and money there.
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acarined
Regular Member
Joined : Jul 2015
Posts : 422
Posted 8/18/2018 6:19 PM (GMT -7)
Gianna, you should start a new thread, I'm sure you aren't the only one here who was diagnosed with lupus.
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k07
Veteran Member
Joined : Sep 2015
Posts : 3443
Posted 8/18/2018 6:25 PM (GMT -7)
Buckeye - i sent you a message. I figured out who dr. R is. Have not heard anything about her.
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