hi everyone..i started feeling unwell in January 2017 constant chest pains.. and no answers why apart from being told its costochondritis.. then around October last year I became really ill.. vertigo.. tingling all over..weight loss.. burning skin.. muscle /tissue loss. balance issues ..doctors told me it was nothing to worry about and gave me medication for vertigo and told me to relax.
Fast forward to now and I've got joint pain/ loss of cartilage..loss of tissue all over especially legs/hips feet and hands. constant fatigue..poor digestion..burning legs.. random shooting pain everywhere and many other symptoms i could go on forever ..
has anyone with lyme got these symptoms.. i tested negative in the Elisa test from my gp but they offer no other alternatives to what it could be..
Hi edcon, welcome to out community.
when my symptoms of lyme appeared - within 6 months I had these ones from your list:
weight loss (very quickly) including significant muscle atrophy, balance issues, joint pain, poor digestion (pieces of food in the toilet ), shooting pain....
Plus many more.
The Elisa is a stupid (sorry) test....
What you want is a Lyme WB. Call the Igenex Lab in California, they will send you a test kit.
The best bang for your buck is the Lyme WB IgM and IgG. Total cost $250.
You need a Dr. to sign the lab req. Get the blood drawn and send off to Igenex via Fedex. Send it early in the week so they get it before the week-end (otherwise it sits for a couple of days)
We can help you find a LLMD (lyme literate Dr). Start a new thread titled: "Looking for LLMD in/near_____" and fill in the blank.
There is generally a wait time to get in - weeks to months.
You can take your test results to your first appt.
Alternatively, you can find LLND to treat herbally. If that's what you're wanting, then in your new thread put "LLND"
We encourage our new members read through the information contained in the thread at the top of the page: "New to Lyme?..Start Here!" It's packed full of useful information.
Keep reading posts, asking questions....it's a great group here.