Glad to hear Cutler's protocol did not make you feel worse. But did it make you feel better? After how long?
Were you able to tolerate low dose DMSA?
For me, the biggest issue is dosing through the night. That's not going to happen with Lyme. Also, people do this protocol for a year or longer. If I stop sooner, what happens?
It is difficult to answer your question. I became seriously ill in 1982, lost my job developed severe MCS, was housebound with a a long list of problems. I was not diagnosed with heavy metal toxicity until 2006. That is a very long time I spent on wrong headed dangerous protocols for all sorts of things I "might have".
So not only was I diagnosed more than 2 decades after my illness started, but did a great many things that only compounded the problem and put me in a much larger hole that I had to dig myself out of. Cutler's protocol gave me stability for the very first time. I am making progress, but it is slow. I am not the norm for those using Cutler's protocol. The sooner one is diagnosed and receives proper treatment, the less damage is done and the shorter the recovery period. The person that started the FDC group on Yahoo, Bryan Rosner, had Lyme.
No one can tell you how long it will take to get better. No one can tell you what your body burden is because once metals are absorbed by certain tissues, glands and organs they are no longer in any measurable body compartment. Chelation challenge tests are dangerous and tell you nothing about
You asked about
DMSA. That is used for mercury and/or lead. I have mercury, arsenic, and thallium. DMSA is not appropriate for arsenic. I take low dose DMPS. It's half life is 8 hours so dosing is q 8. I am a fast metabolizer so must take q 6 hours. Once you add lipoic acid to the regimen, I dose that q 2 hours during the day and q 3 hours at night. This is 3 days on and 3 or more days off. I generally have to take more days off, say 5.
There are numerous people with lyme in our group that do the protocol and receive great benefit, but you do have to commit. One of our moderators could not handle anything but DMPS (because q8 hour dosing) until she was farther along in treatment. She tried to use ALA (which requires q3 dosing) in the beginning, but would wake in the morning and find pills all over the place, so she used DMPS only until she was able to wake for the night time doses required by ALA. ALA is the only chelating agent that is fat soluble and chelates the brain, so you would want to add that eventually.
People do take breaks from chelation from time to time when ill, have surgery, etc.
Keep in mind the first thing to figure out is whether you even have heavy metal toxicity.
Hope this helps answer your questions. More info. can be found at: