It is very difficult, I know, but please try not to get into "bleak" mode.
I was SICK for a few years before a diagnosis of lyme, bartonell, and ehrlichia. Until late March, I was on a number of different antibiotics for a little over a year. Very gradually symptoms began to lessen and most of them are gone (fingers crossed).
The doctor had me stop all antibiotics in March because I was diagnosed with breast cancer and had to have surgery. The surgeon wanted me only on the antibiotic that was administerd IV while in hospital and then orally for a week after discharge. The thought of stopping antibiotics to treat the tick borne infections was frightening. I was so afraid symptoms would come roaring back, BUT they have not.
Testing done in April showed my cd57 had tanked again, maybe because of the cancer or stress or tick borne infections ... I don't know. The ehrlichia test still came back positive, and the lyme igm western blot for the first time in more than a year was not positive but was "indeterminate".
A few weeks ago another round of testing was done and I will get results at an appt w/LLMD in about 10 days.
Anyhow, sorry for being so long winded. Just want to be sure you know that even folks like me who had the infections untreated for years can and do recover. Maybe not 100% but sure pretty close to normal.
How long have you been on antibiotics? From my experience, they are what did the trick.
Best of luck to you. Don't give up!
I haven’t been on antibiotics very long, mostly because I’m broke and cannot afford to regularly buy all the supplements that I need to take along with them like probiotic, detox stuff, cyst buster, etc. to prevent things from getting worse.
Earlier in the year I was on bactrim for four months but had to stop because my insurance stopped approving it. I also developed mast cell activation issues so figured I would just stop treatment for awhile anyway.
I have had general symptoms for about
14 years, with neurological symptoms first presenting about
5 years ago and making me too sick to work. This summer I decided to suck it up and worked part time to afford to start up treatment again, and have been on minocycline for 5 weeks.
So in total, I’ve had only about
5 months of antibiotics, which I know means I’m still in the very early stages of recovery and should neither expect results nor think bleakly.
Thats fantastic it hasn’t come back for you, though, especially considering the other issue your body has to deal with. I’ve got fingers crossed for you too.