Posted 9/5/2018 2:38 AM (GMT -6)
My quality of life isn't so great, to put it mildly. I was denied last October for disability, as they determined that I "could still do some things" or something like that...
I'm wondering if I should mount an appeal myself. It's demoralizing to go through that on top of all the Lyme n Co symptoms as many of you probably know.
I think I was supposed to file an appeal immediately, or that's what an attorney would have done.
As far as scientific papers, I thought this thread was finally new definitive evidence of PTLDS! d'oh!
Chronic Lyme or Persistent Lyme or whatever you want to call it. I honestly think it is much of the same thing: CFS, Fibromyalgia, MSIDS, ME, Encephalomyelitis.
My new symptoms are running mild fever and lymphatic pain in my armpit.
It seems like you have to prove that you are blind, deaf and/or missing limbs to have a cut and dry case.
I'm not a complainer type and honestly don't have the energy for it but this is ridiculous..but I think someone on here had luck contacting a state representative of some sort consistently and persistently until they finally made a call or wrote a letter to the disability determination board.
My brief conversation with an SSI rep was that fibromyalgia is more often recognized, but that is only a symptom.
What a nightmare to have a nerve disease with phantom pain...
and to have 30% of usual energy...
and to have to switch "careers" (I barely got started at my chosen fields) and struggle because of it.
I had ~9-12 doctors records of treatment, including psychiatrist, cardiologist, infectious disease and they still denied:
I've heard that 79% of applicants are denied on the first try...anyway.
Trying not to sound dramatic, but they are not interested in science as they are in the business of denial... mostly.