Blue Roads said...
Hello .. new here and have a general question. I had all the typical tick disease related symptoms but after much testing with no diagnosis (I did have the good tests) I sought help from another doc who thought I had mold illness. I was put on cholestyramine and it ever so slowly helped me with at best 95% improved symptoms. I stayed symptom free for about 6 months then they very slowly came back again. Could someone tell me what this means, that the binder actually worked - for a while anyway. If it WAS Lyme or tick related would it have? Can I assume it was mold and somehow I'm still exposed? I know this is pretty general but any opinions would be appreciated. I am so not enthuised about returning to any docs and getting back on that merry go round.
Hi Blue Roads - Welcome !
Have you had your home tested for mold ? And your work place?
I think maybe start there. Others will be along to suggest the best tests.
So your Lyme WB was negative - do you have the results? even with a negative result there can be lyme specific bands that indicate an infection.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi