( TLDR - Australian, 31 male, have CPn, likely co infections, definite mold exposure, prob other toxins. Symptoms are severe, and look like im developing Parkinsons, which can be toxin related. Have been on roxythromycin about
a month, due to probs every time i start adding in doxy/mino. Should I detox from mold, etc, fully first? Or is it ok to do antibiotics at the same time as detox in severe cases? )
(... and here is the fully story, if necessary...)
Im just going to dive right in...
I have neurological symptoms which mimic Parkinsons/Lewy Body more than anything (though im only 31) with cognitive jumbling and impairment. So, horrible nightmares and disturbed sleep, sometimes sweating, mixing up words in my head, anxiety, some heart arythmias and weirdness (though ECG normal), extreme muscle tightness, especially in neck, more recently poor balance, muscle spasms and twitches, and a tremor. Also visual symptoms such as floaters, little stars, and other weird patterns when i shut my eyes, sometimes.
A neurologist said my tremor isnt the classic Parkinsons tremor (though its gotten worse since then), a lumbar puncture to look for dementia markers was normal, as was a standard MRI, but I fear I may just be in the early stages. I first thought Parkinsons/Dementia, then learned that my symptoms were very common with mold toxicity, then also learned they were common with Lyme disease and co infections.
I tested positive to having a chronic chlamydia pneumoniae infection.
I was bitten by a tick a few times in North Carolina when I was seven, with no rash, but aside from developing OCD as a kid, no severe symptoms.
I was exposed to a moldy room for many years, but that was more than six years ago. Symptoms started around then, but didn't get memory and joint problems until i was stupidly prescribed an aromatase inhibitor for six months for excess estrogen (probs due to mold / CIRS) which started the downhill slide. But i soldiered on and was ok, despite having symptoms in retrospect, and didn't get very sick until... about
a year ago I was very stressed, i lost weight and wasnt eating enough, and had been prescribed a corticosteroid nasal spray for sinus problems (which i believe makes Lyme / CPn grow).
So a perfect storm and now here I am. I studied medical science for two years before changing careers, so understand what I read and have been doing loads of research. This has been useful since living in Aus, Lyme and TBD isn't well known. However it hasn't helped my obsession and stress levels of course. But really... i have the symptoms of parkinsons/lewy body, and everyone here thinks its "all in my head".. so of course I'm worried and want to treat it.
Ive been given doxy + roxythromycin + tinidazole to pulse, by a doctor here who knows about
CPn. Im taking the roxy now, and am going to try take the doxy again (had gut issues starting, so went to other one first)... but....
Ive also seen a functional medicine doctor who has done tests on many things, which seem ok, apart from some lowish testosterone. So she believes the majority of my problems are toxins - from the mould. I.e CIRS, etc. Ive been given cholestyramine and some other detox stuff, for that. Havent looked at metals or anything yet.
My question (finally) - should I be off antibiotics to detox the mold completely FIRST? Ive been listening to Dr Horowitz who has said in such patients, "you need to get the detox pathways working before touching the bugs".
I CLEARLY have a problem with infections / TBD... however... ive read Dale Bredesen say that people with Parkinsons /Lewy body have TOXIC exposures. So Im quite keen to detox, investigate heavy metals, etc first. Its just ive been on the roxy (with periods trying to take doxy/mino) about
a month now, and don't like the idea of stopping and starting ABX too much.
Thank you so much for any advice
I look forward to contributing and sharing my experience with everyone. Really, all this research ive been doing can hopefully end up being useful by sharing it with others, I figure.
Post Edited (OzLyme) : 9/16/2018 2:45:46 AM (GMT-6)