Posted 9/18/2018 8:23 AM (GMT -7)
HIV-AIDS destroys T-cells.

LYME-immunosupression renders B-cells immature and useless.

Both are Acquired Immune Deficiencies.

https://rjspiritualityandthetruthaboutlymedisease.files.wordpress.com/2018/07/screenshot_20180608-014819_twitter.jpg?w=736
Posted 9/18/2018 9:34 AM (GMT -7)
When I post about Lyme Disease Awareness Month each year on Facebook, someone always comes back with "just found out a friend of mine has Lyme Disease and can't find a way to feel better," or something close to that.

It is a disgrace and your facts, quotes and overall information are excellent ways to point out the absurdity of the situation. I used to hide that I'm dealing with it. One day I realized the more I hide, the less people know about it. Not treating myself as a victim, but advocating for something to be done and awareness.

If we stay "bravely" silent, we will silently remain in same, miserable boat.
Posted 9/18/2018 10:11 AM (GMT -7)
Thanks for the extensive post, Birthdaysuit!

How are you doing?


Some of those long links have made your post go 'wonky'....past the page.

To fix that - could you please change the links to shorter links? (tinyurl is one way)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
Posted 9/18/2018 10:16 AM (GMT -7)
Hi birthdaysuit,

I'm sorry you are suffering and focusing on the negatives, yes, there ARE so many negatives to this disease. On the opposite side of the coin there are also positives and that is what I mostly (couldn't do it all the time) focused on. Bottom line? Treatment is all about choices.

I was disabled for about a year when I lost the use of my legs but you know what? I went through worse in my younger years where I was seconds away from having my left leg amputated from a car accident. So I guess it's a matter of one's perspective on disease, life experiences, living in the now, etc.

When (past tense) I was sick from chronic lyme I chose to read posts from people who were making progress and healing. I didn't want to fall into the "trap" of reading negative stories for fear of that I may get drawn in.

By doing that I chose to follow protocols where people were getting better and I was very lucky (after some trial and error) to chose a protocol that worked for me and this was around 13 years ago.

I live and walk in the woods and I don't have any fear of ticks. I'm sure during all the years I have been well that I must have gotten bitten several times but I never became sick. I attribute that to all I have learned from my own life experience with chronic lyme which I still incorporate to this day (detoxing, internal cleanses, diet, exercise, etc.).

Leading cause of death is suicide from lyme? Do we know this 100% to be true? I don't know. I do know many that died from adverse reactions from antibiotics (many of them never posted on HW but I knew them outside of this forum). Research Dr. Gary Null and read "Death by Medicine"...

My only suggestion to you is to focus on the people who have healed and find out what they did to get better instead of all this negativity which is not going to benefit you nor anyone else. There are so many success stories out there!

Wishing you well,
Denise
12 years well ~ used Dr. Jernigan's protocol from his book about Biological Medicine (used Borrelogen, Microbojen and Neuro-Antitox).

I still detox even though healed and drink Green Vibrance. I come back to help others for others helped me when I was sick. Pay it forward! smile

http://javuviews.wordpress.com/2013/04/24/how-i-became-better-from-chronic-lyme
Posted 9/18/2018 10:24 AM (GMT -7)
Good point by Deejavu. It's hard not to get caught up in negative.

Working to stay positive, but the point of advocating and awareness is how things can change. It's how diseases, such as AIDS, gained so much research and better answers.
Posted 9/18/2018 11:16 AM (GMT -7)
Thanks running wild! To my knowledge there are plenty of lyme survivors that are advocating and bringing awareness such as Katina Makris (who had chronic lyme and is a published author), Dr. Rau from the Paracelsus Clinic in Switzerland who speaks at the Marion Institute (I believe one can listen to his lectures on youtube), Dr. Jernigan who attends conferences and summits and gives presentations, and so many more.

/katinamakris.com/

/www.bayarealyme.org/events/speaker-series/

/www.lymedisease.org/mylymedata2018-speaker-discuss-future-lyme-diagnostics/

www.chroniclymediseasesummit3.com/

And there are so many more! I can almost promise you that none of these speakers talk about murder and all the other negative words written above...

Also, let's not forget about the free podcasts, youtube video's, radio talk shows, etc.

Bottom line? There are more positive ways to advocate and bring awareness. I am concerned for the members here who are really down, living out of their car, were floxed, and the list goes on. In my opinion the above post is not helpful at all unless one is of the mindset that misery loves company.

Denise
12 years well ~ used Dr. Jernigan's protocol from his book about Biological Medicine (used Borrelogen, Microbojen and Neuro-Antitox).

I still detox even though healed and drink Green Vibrance. I come back to help others for others helped me when I was sick. Pay it forward! smile

http://javuviews.wordpress.com/2013/04/24/how-i-became-better-from-chronic-lyme
Posted 9/18/2018 11:17 AM (GMT -7)
I don't see this "document" as negative. There seems to be a pretty good analysis and good evidence to back up the original posters claims. I'm not saying everything claimed here is accurate (I'm not saying it's not either) but I think the worst possible thing to do is turn a blind eye and remain ignorant to the big picture of what is happening. I am part of the problem. I think many of us choose to grit our teeth and suffer in silence rather than get mad, become organized and really make a difference. I really don't think anything is going to change with the "system" until the community as a whole bonds together and starts making waves.
Posted 9/18/2018 11:19 AM (GMT -7)
The term 'murder" does seem like hyperbole though.
Posted 9/18/2018 12:41 PM (GMT -7)
Girlie said...
Thanks for the extensive post, Birthdaysuit!

How are you doing?


Some of those long links have made your post go 'wonky'....past the page.

To fix that - could you please change the links to shorter links? (tinyurl is one way)


Fixed some of the longer ones. I'm doing pretty good, how are you girlie? I have a new LLMD now, who is also a scientific researcher. He is great and talks a lot about anergy and immunosupression, so he's not just a take antibiotics and that's it kind of LLMD. He tries all different kinds of protocols and is working on getting a grant for a bartonella drug that will be able to kill Bart in all of its forms in vitro and vivo. No antibiotic or drug has yet to be able to kill bart directly.

But yes I'm doing better but not great. A lot of my neuro symptoms have subsided but I still have pain and joint problems. Right now I'm pulsing and taking immune stimulating herbals to combat B-cell supression which I was low with the tests I took.
Posted 9/18/2018 1:08 PM (GMT -7)
Lymie24 said...
I don't see this "document" as negative. There seems to be a pretty good analysis and good evidence to back up the original posters claims. I'm not saying everything claimed here is accurate (I'm not saying it's not either) but I think the worst possible thing to do is turn a blind eye and remain ignorant to the big picture of what is happening. I am part of the problem. I think many of us choose to grit our teeth and suffer in silence rather than get mad, become organized and really make a difference. I really don't think anything is going to change with the "system" until the community as a whole bonds together and starts making waves.


100% agree.

I do not take this as negative either. So many of us do suffer in silence. We do need to figure this out.
They (CDC / ALDF/ ISDA) have not done it for us in 50 years.

Even though some of the post appears to be untested hypotheses, some are rather compelling like:

"We have cracked the code of the most politicized disease in the history of diseases. Lyme disease is really a form of tick bite sepsis, and what we know as “Chronic Lyme” is really post sepsis immune dysfunction, featuring immunosuppression, failure of antigen presentation, collapsed B cell germinal centers, tolerance and cross tolerance, fatigue-inducing herpesviruses and opportunistic infections of all kinds. But is this the end of the story? Not quite."

Sounds very plausible to me doesn't it? Sure could be nice if world class researchers were paid to look into this.

These are the kind of discussions we need to be having. IMO, our community(activists, patients, ILADS, and LLMD's) needs to focus on the science. To do that effectively we need to think about how the science progressed from 1980 to where it is today.
Posted 9/18/2018 1:09 PM (GMT -7)
birthdaysuit said...
Girlie said...
Thanks for the extensive post, Birthdaysuit!

How are you doing?


Some of those long links have made your post go 'wonky'....past the page.

To fix that - could you please change the links to shorter links? (tinyurl is one way)


Fixed some of the longer ones. I'm doing pretty good, how are you girlie? I have a new LLMD now, who is also a scientific researcher. He is great and talks a lot about anergy and immunosupression, so he's not just a take antibiotics and that's it kind of LLMD. He tries all different kinds of protocols and is working on getting a grant for a bartonella drug that will be able to kill Bart in all of its forms in vitro and vivo. No antibiotic or drug has yet to be able to kill bart directly.

But yes I'm doing better but not great. A lot of my neuro symptoms have subsided but I still have pain and joint problems. Right now I'm pulsing and taking immune stimulating herbals to combat B-cell supression which I was low with the tests I took.


I'm plugging away at it. I have improved in the past 6-8 months....

Working on my last 8 or so symptoms. My pulsatile tinnitus left me a few months ago - I think it was most likely babesia....
And my brain is pretty good too now...thank goodness.

I'm currently on Dr. J's Persisters protocol.... so we'll see what that does.
(I started going to the J Clinic in February)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
Posted 9/18/2018 1:16 PM (GMT -7)
What is evident is the frustration in birthdaysuit's post. Totally understand that. People without Lyme Disease won't, though the information presented by birthdaysuit is well documented and researched.

The ones we need to reach, in my very humble opinion, are the ones who do not understand it. WE get it, but WE already got it. Getting those who do not understand how a tick can destroy a life is the key. Finding the balance between making the point and not making someone without Lymea doubter is hard.
Posted 9/18/2018 1:20 PM (GMT -7)
Deejavu said...
Thanks running wild! To my knowledge there are plenty of lyme survivors that are advocating and bringing awareness such as Katina Makris (who had chronic lyme and is a published author), Dr. Rau from the Paracelsus Clinic in Switzerland who speaks at the Marion Institute (I believe one can listen to his lectures on youtube), Dr. Jernigan who attends conferences and summits and gives presentations, and so many more.

/katinamakris.com/

/www.bayarealyme.org/events/speaker-series/

/www.lymedisease.org/mylymedata2018-speaker-discuss-future-lyme-diagnostics/

www.chroniclymediseasesummit3.com/

And there are so many more! I can almost promise you that none of these speakers talk about murder and all the other negative words written above...

Also, let's not forget about the free podcasts, youtube video's, radio talk shows, etc.

Bottom line? There are more positive ways to advocate and bring awareness. I am concerned for the members here who are really down, living out of their car, were floxed, and the list goes on. In my opinion the above post is not helpful at all unless one is of the mindset that misery loves company.

Denise


My post isn't trying to hurt anyone. My post is my perspective based on medical literature. If you find it wrong or offensive, that's fine but the simple fact is that people died because of fraud which is still true to this day. None of the doctors you linked talk about post-sepsis or immunosupression which I have been suffering from. Many of the people you listed sell books, and lots of them. That's fine and everyone needs to make a living, just understand that everything truthcures and other affiliated groups are doing is NOT for profit but for truth and prosecution. If we can not understand how we got here today and why Lyme is so controversial nobody will ever face repercussions and the truth whatever it may be will never get out.

The problem is doctors either refuse to talk about borrelia immunosupression and its connection to B-cell supression and post sepsis syndrome or are ignorant of the fact. LLMD's and IDSA doctors define the disease pathology differently, but at one point in time, before 1994 they knew for twenty years what Borrelia Burgdorferi really was when left untreated and how it impacts your immune system. If you have a LONG UNTREATED infection, chances are antibiotics are not enough. That's why it is very important to get immune panel tests done to see how your immune system is working. Patients should also get cytokine marker tests done. I'm not against antibiotics, they have saved my life but I do not believe they are the cure when the infection(s) have gone untreated for far too long.

I have linked all the studies needed to illustrate my point with hundreds of 'Lyme Disease' sufferers who also write about this very same thing that both the IDSA and many LLMD's refuse to acknowledge and or are ignorant of. I'm in no way claiming that all LLMD's are bad or that they are in cahoots with the IDSA and drug manufacturers. The majority are great doctors that care deeply about their patients, I know my LLMD does. For reference, Bayarealyme and a few other organizations have panel memebrs and directors that directly defrauded the public back in the 90's.

However, talking about our illnesses is not enough. We need drastic bureaucratic changes and a criminal trial for racketeering and RICO violoations. They created a organization (ALDF) just to mock patients who suffered from chronic, persistent symptoms. These people are still in power today and hold patents on borrelia tests that are far more accurate in the diagnosis but refuse to use them. They have conspired to monopolize test kits, vaccine and recombinant kits with the sole purpose of profiting off of us. Negative, yes but that's the truth.

They do not care if we talk about how we feel. Of course, millions of people who are suffering with this disease are doing just that. And that is great. Those people should focus on helping patients who do not have the financial stability to help themselves. However, in order to stop this suffering we have to understand the Lyme fraud itself and how definitions were drastically changed to benefit profit margins. These policies are still in place today and not many people want to talk about it. Fighting a negative can create a positive.

There's a time and place for everything and not much is posted about this here. So, I thought I'd share.

Keep in mind all of this research is done by common people, suffering patients, pathologists and doctors all over the world. There is no profit here, nobody is trying to sell overpriced books which a lot of LLMD's are doing. We simply want the truth so that we can finally get compensation for malpractice as well as to transform Lyme research groups and give back to indepedent scientists willing to research Borrelia burgdorferi, co-inections and their disease processes. Lyme research is underfunded and there's a sad unfortunate reason for that. God bless.

Post Edited (birthdaysuit) : 9/18/2018 2:25:14 PM (GMT-6)

Posted 9/18/2018 1:35 PM (GMT -7)
I agree.

As far as Activism, this might not be a good piece to share with a friend or family or stranger etc... This is the kind of stuff I feel like us in the community should be discussing.

I feel like activism is not the answer to our plight.

I believe when the science is there, we will not need activism.

To achieve that; we need to know where the science is, how the science got to where it is, and what do we need science to investigate. I feel like ILADS, LLMD's, and Lyme activists are failing us here.


LOL i was trying to reply to Running Wild's post above , but forgot to quote the post.

Post Edited (Missouri) : 9/18/2018 2:40:37 PM (GMT-6)

Posted 9/18/2018 5:15 PM (GMT -7)
Thank you for this birthdaysuit!

Please also remember that it didn’t just start in the 80s. There’s no telling how far back these atrocities go. The many scientific articles dating back to 1911 where Bb was found in the brains of what the medical community termed MS, and still do.

Operation Paperclip (see Annie Jacobsen) where Years before Heinrich Himmler’s “favorite” scientist Eric Traub retained a Rockefeller scholarship to study in the US before WWII, and he wasn’t the only German scientist. Rockefeller = NWO. During WWII, Eric Traub led the **** scientists by performing cruel experiments with the Japanese scientists. These experiments were bioweapons experiments. The two evil empires had found a way to make ticks their vector for carrying Lyme disease, other bacterial infections, viruses, parasites and fungi. The experiments were done on Jews and POWs.

After the war, 2000 **** scientists were secretly ushered into “normal” lives here in the US, where their names were changed so they went unnoticed (Operation Paperclip). This was done, as already mentioned by birthdaysuit in a similar capacity, by the US Army and supported by the USDA (bioweapons). They got their orders from somewhere. Was it Truman, or the NWO? Anyway, some worked on mind control experiments to create super soldiers, like MK Ultra, some worked on chemical warfare, and lastly, some worked on bioweapons, such as Lyme disease.

Enter Lab 257 by Michael Christopher Carroll. The “designer” of this facility off the coast of the Hamptons, Lyme, Connecticut, and so on, was a **** scientist. His “guidelines” were used in further cruel experiments on animals on Plum Island, and it was referrred as an Animal Disease Research Lab, both by the government, and uttered out of the mouth of Anthony Hopkins as Hannibal Lector in “The Silence of the Lambs.”

Forgive me if I’m repeating information or if it seems I’m stepping on toes. I think most of us know these things, as hinted by birthdaysuit. I wanted to weigh in, but I’m not very well at the moment after a too long lymphatic massage earlier today.

Godspeed to all who are tirelessly working to uncover the truth.
18 years with CIRS
16 years with Lyme, Bartonella, EBV, Candida, Crypto, Protozoa, and I believe God only knows the full spectrum.
I’ve done Byron White, ABX, a sham “Lyme clinic,” and now focusing on binders for CIRS.
Interested in Buhner’s protocol for Bartonella and antiviral technology long used by cancer patients to bust Lyme disease.
Medical Lab Scientist for almost 12 years.
Still fighting
Posted 9/18/2018 7:08 PM (GMT -7)
Hi again birthdaysuit,

No, I am not offended at all because I sense your frustrations, fears, suffering. I feel for you and wish that you find your healing path. Perhaps you needed to vent, I don't know. I sense anger from you and I truly feel sorry for what you are going through.

You stated your information is from medical literature. I suggest you start searching for more medical literature that gives hope because it's there. If you want some links I would be more than happy to share them with you.

The few people I listed off the top of my head suffered from chronic lyme and they tell their stories about how they healed. Sharing their stories is a form of activism without the negativity. Some of them did write books but those same people also have free podcasts, video's, summits, etc. I subscribe to many of them as technology has improved and there is more information regarding lyme disease then ever before thus I enjoy being updated so I can help others.

Let's take Dr. Jernigan okay? He thought he was going to die from chronic lyme and had his funeral planned out. He ended up healing himself and decided he wanted to help others from what he learned from his own experience. He shares "free" advice on his blogs, video's, etc. He doesn't have to do that but he cares about others. He also answers questions from people that are suffering on his facebook page (again, that is free).

Information is power in my opinion but there are all different types of information. What you posted in my view is negative information. I prefer positive information regarding how others have healed and what methods they used.

I don't think this forum was designed for activism and/or lyme awareness. There are other places for that. This forum is a place where people come to for support, hope, and advice and that's what I try to do by sharing my own story on how I healed.

If you really enjoy activism then why not start a blog of your own? Blogs are free and many members here have their own blogs.

Best to you,
Denise
12 years well ~ used Dr. Jernigan's protocol from his book about Biological Medicine (used Borrelogen, Microbojen and Neuro-Antitox).

I still detox even though healed and drink Green Vibrance. I come back to help others for others helped me when I was sick. Pay it forward! smile

http://javuviews.wordpress.com/2013/04/24/how-i-became-better-from-chronic-lyme
Posted 9/18/2018 7:36 PM (GMT -7)
Thank you for your posting and informative history.

These are human rights violations.

We cannot expect the government to do anything about this or get justice. Is this negative thinking? Yes, but it is the truth which is sometimes not pleasant. Relying on the government to suddenly change their way and start righting wrongs, at this point, I do not think is a winning strategy. The winning strategy, of course, is to find the cure and move forward. A lot of this requires positive thinking which I feel everyone resonates very well with. Positive thoughts towards finding a cure with a reminder of the negative consequences of relying on authorities to help us.

There does appear to be circumstancive evidence that there is some evil going on here. At some point I'd like a list of names of these wrong doers, but I am concentrating on my healing for now. There is something strange going on with these doctors, I can see it in their eyes. I think a lot of them are also on antidepresentants because, I am very smart, and when I bring up my technical concerns about their diagnosis ("how come my rash goes away when I am on antibiotics but you want to give me SSRI?") I can see they have some kind of internal struggle. There is no solution to the government corruption other then to withdraw the consent to be governed, the best you can, and concentrate on healing using whatever method or resources we can put together. I think this forum, along with LLMD and LLNDs around the country does this and I am grateful for the community on this board.
Thank you Birthdaysuit
Posted 9/18/2018 9:45 PM (GMT -7)
THANKYOU for posting.
It gives me hope and undeestanding ... That I am not alone in feeling overwhelmed.
That someone else is going through what I am going through mentally when trying to digest what is happening. Why people are dying... why no one around me is upset about it...
I see it in my kids doctor. They don't believe in chronic Lyme.
I feel supported in many ways. Knowing we are not alone in our thoughts and perceptions helps.
And I also feel supported by positivity. It all helps me.
I read this just when I felt alone with my thoughts.

Ps. I was thinking how passing out info at a local community event would be helpful to raise awareness. I just don't know the right piece of info. I'm in an endemic area. A lot of my neighbors are sick. And a lot don't know exactly why. I'm not sure I really want to be in it any deeper than I am. I have to put on a smiley face for my kids and all. But man people don't realize what they are sick with. It's hard to see it, and live it.

Post Edited (Lightlife) : 9/18/2018 10:53:55 PM (GMT-6)

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