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Lyme osteoarthritis in hands...

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Lyme Disease
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sandyfeet
Veteran Member
Joined : Mar 2018
Posts : 1490
Posted 9/24/2018 12:34 PM (GMT -7)
I've had moderate arthritis pain in my hands for around a year now but it hasn't affected the size of the knuckle joints until this last month - I guess the cartilage has been eaten enough that it's starting to cause bone deformation.

Last month I lost the ability to wear my wedding ring which I wore straight through both pregnancies and a substantial lyme related weight gain (mostly gone now thankfully). Oddly enough this happened even though the pain has been improving over the last few months so I thought things were getting better.

Is this sort of degeneration irreversible once the bone starts to be affected? Experience, tips, thoughts?

It's mostly just vanity I know but I miss wearing that ring rather a lot and this is one of those pre-lyme things I'm finding a little hard to let go of.

Thanks!
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Healing98
Veteran Member
Joined : Jul 2013
Posts : 1451
Posted 9/24/2018 12:56 PM (GMT -7)
Interesting subject. If you have a moment I will share something with interesting with you.

I have been taking Doxy for a few years, a few weeks on/off at a time. Well, the last time that I took it, maybe three months ago, I began to have arthritis pain in my hands, fingers, joints, knees and mostly everywhere two bones joined together. I stopped taking it and within a few days it went away.

I started Doxy again and within a few days it came back. But this time it took longer for it to go away.

So I talked to my Lyme doctor and he changed me to Minocycline. Well, within a few hours of taking Mino the joint swelling and pain came back, and again, it took longer than before to go away, probably like a week.

So I thought that maybe I had developed an allergy to tetracyclines, so I moved on to a different class of antibiotics.

Well, I started taking Ceftin, and within a few days the joint inflammation came back. This time it came back with fatigue and so bad that I could barely walk from the joint pain but also from being so tired.

One evening, when I was feeling so bad, I decided to take my herbs with Ceftin. Would you believe that when I woke up the next morning all of the inflammation was gone? I mean, the knees hurt so bad that I could barely stand on them. Next morning, nothing! all gone! I thought that I had Carpal Tunnel from being on the computer at work all day. That was gone too.

I have been taking my herbs for years now, alone and in combination with other antibiotics, but never together with Ceftin. So I am unsure as to what the interaction was between Ceftin and my herbs (Japanese knotweed, Turmeric, CSA, Cats Claw, Sida Acuda, houttuynia, Monolaurin) that got rid of the inflammation within a few hours.

I stopped taking my herbs and continued with Ceftin to see what would happen. Within three days the joint pain started again, although not as bad as before.

Interesting, right?
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sandyfeet
Veteran Member
Joined : Mar 2018
Posts : 1490
Posted 9/24/2018 2:13 PM (GMT -7)
I always have time for interesting lyme stories Healing98 :D

I'm all herbs at the moment so I don't know the antibiotics well but that sounds like a wonderful synergy!

Definitely interesting (and a reminder to me to boost my coconut oil and tumeric).
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sandyfeet
Veteran Member
Joined : Mar 2018
Posts : 1490
Posted 3/26/2019 5:11 AM (GMT -7)
Just wanted to update my question here that the joints can definitely improve with treatment.

I am back to being able to wear my ring most days although my fingers still look quite affected. Six years and I now very much have old lady hands lol.

Very happy to be back at this point and hoping most of the joint damage here and elsewhere can improve with care.
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Girlie
Forum Moderator
Joined : May 2014
Posts : 44360
Posted 3/26/2019 7:26 AM (GMT -7)
That is really good news sandy.

It’s great to hear stories where the damage that occurred from these nasty, no-good-for nuthin’ diseases gets better.

Lyme/bart affected many of my joints at various times (shoulders, wrists, fingers, knees, toes)
I never got the larger joints - but my fingers on my left side(bad side) - seemed to swell- the entire fingers so I stopped wearing my rings...felt too odd on my right hand...

They have returned to normal now.

Oh how my body has changed... I had an athletic build before - now my muscles are soft and I got cellulite on my legs.
I think losing 14 lbs in a few weeks time was part of the reason.
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sandyfeet
Veteran Member
Joined : Mar 2018
Posts : 1490
Posted 3/26/2019 9:43 AM (GMT -7)
Thanks Girlie.

I've lost so much muscle too, I'm slowly trying to get some of that back but it's slow work. I was worried that much of the joint damage might be irreversible - it's nice to be feeling a little more hopeful on that front. smile
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Lapis_29
Veteran Member
Joined : Sep 2017
Posts : 1719
Posted 3/26/2019 1:30 PM (GMT -7)
try this

2 drops of cinnamon essential oil + 2 drops of Frankincense Essential Oil (Boswellia serrata) essential oil in about 1 tsp coconut oil. It is too strong you can dillute it. Rub into hands thoroughly.

the cinnamon kills lyme, the Frankincense is a great anti inflammatory

Plus take 6 grams collagen peptides, 3 gram glucosamine, and 2 caps hyaluronic acid every day.
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sandyfeet
Veteran Member
Joined : Mar 2018
Posts : 1490
Posted 3/26/2019 4:05 PM (GMT -7)
Thanks Lapis!

I've been meaning to try glucosamine again now that I'm over the worst. I took hyaluronic acid early on and I can't say I noticed anything at the time but then the infection was too severe then. I should try that one again too as I feel so much better joint wise but not 100% yet.

I've used oils but they're not a major part of my protocol currently. As I understand it boswellic acids are not present in the EO but are better extracted in water or alcohol - this was a part of one of the tinctures I used for a long time which was very effective.
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Lapis_29
Veteran Member
Joined : Sep 2017
Posts : 1719
Posted 3/26/2019 4:31 PM (GMT -7)
as far as HA goes -

https://www.healingwell.com/community/default.aspx?f=30&m=4112412&g=4112412#m4112412
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sandyfeet
Veteran Member
Joined : Mar 2018
Posts : 1490
Posted 3/26/2019 5:07 PM (GMT -7)
I remember this post! :D It was what put this back of my mind to do again.
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