JulyMorning, first of all, there is no need to apologize. Lyme can kick our butts like nothing else can. It is greatly appreciated that you help out as much as you can. What really counts is the help that we give each other. That is what makes this forum so special to each of us.
That being said, There are a few things that I would like for you to consider. If your brain symptoms are caused by Lyme, I have found Ceftin and Minocycline to be very effective for dealing with my brain symptoms. I have tried so many different abx and these two seem to be the most effective at stopping or minimizing the symptoms.
One other thing that I would like you to consider is Candida. Many of the symptoms that you mentioned can be caused by Candida. One of the things that stand out is the feeling that you could no breathe and chest pain.
You see, I have had symptoms similar to what you experienced. For me, the Candida irritates my esophagus and what I think is an ulcer on the left side of my stomach. When this happens, I feel like I can't breathe. The irritation hurts my chest where it hurts to breathe because as the lungs expand, it somehow puts pressure on the esophagus (or its nerves) and it hurts.
When this happens, the nerve pain triggers an anxiety attack in me, raising my blood pressure and pulse. Last weekend I had such an episode, raising my blood pressure to 175/95 and pulse at 110. My normal BP averages 125/78/78.
Many of the type (neck, back, pressure, electrical, shock) of headaches that I get seem to be nerve related due to inflammation. I can tell because massage, heat or putting pressure on them can make them stop right away.
As for "this is it for me". Trust me, I have been there. It has been so bad for me that one day I put all of my stuff at work in a box and put my wife's phone number and our address on it so they could ship them to her. I was so sick that I was sure that I only had a few days left on earth.
Do you know how sad and depressing it is to create a folder with your insurance paperwork, passwords, and Will in it so that your wife has everything for when you don't wake up the next day? This was me 6 years ago and look at me, here I am still. I am at 70-80% normal and able to function OK most days.
Please don't give up. As ill as you feel, the body is stronger than we think and very resilient. It just needs a little bit (well, maybe a lot) of help and it will pull through.
I think I got lost trying to research Ceftin and Minocycline when I was active here. Not sure where or how to get it and what it might not work with that I have to take for other issues. It's hard to sort this stuff and keep it sorted long enough to do something. I think you feel my pain.
And this isn't the first time it had the "this is it thing". The 3 months I was on Doxy I managed somehow to get to a title company to have my daughter added as owner of my home/property on my demise, as well as the Court House to pay their fee for the transfer. I started a journal of all my necessary affairs of taking care of all bills, animals everthing I do on a month to month basis, for my daughter's use whenever. See, I wasn't fully informed about
probiotics, and since I took high doses for 90 days, not much worth while was left of me, lol.
COPD is a different game. When I had the shoulder surgery the nerve block given me shouldn't have been.
I was told I had breathing issues coming out of surgery, and the anesthesiologist ripped the lidocaine nerve block from my neck when I went back to the hospital unable to breath. He admitted I wouldn't have lasted the night, it was paralyzing my diaphragm!
What I have learned on my own since is that it damaged my phrenic nerve, so still affects my ability to breathe, thus I was put on night oxygen almost immediately and then after a year, 24/7. I am a co2 retainer because of the faulty nerve and diaphragm.
It's between these two issues, and that I can't get 30 feet away from my oxygen without having problems, coupled with this brain thing going on that scares me. And I am 67 so.....
I have had acid reflux all of my life. I used to vomit at being startled during school age. After complaining about
an ulcer I got started on prescript
ion strength zantac for it for at least a year now, twice a day. It does the job. Would this only bother me for a minute at a time? I dunno.
The surgery was Spring 2014. The breathing problems as I said, came immediately, but the realization that I was getting sick again somewhere the following Winter, but knowledge of Lyme and everything else ticks can do, didn't really come until joining this group 3 years ago this past July.