I’m new here. I suspect I’ve had lymes for a long time and had many false positive’s. Two years ago I tested positive and have tested positive- until now. I’m seeing a new LLMD who initially put me on oral abx and is now planning on placing a picc ( which would be my third) and doing iv. He was also going to take me out of work for the 6 weeks or so I was on abx, which as a single mom who works full time as a nurse I could really use the rest. He did labs because I haven’t had them done in awhile and my lymes came back NEGATIVE. I’ve had at least two positive test so I’m very confused, it was a regular antibody test. I have been symptomatic which is why I went back for treatment. I’m very confused right now and concerned that this will change the plan we discussed. Please don’t think I want to have lymes, I just thought I finally found a MD who could help me and now my blood work says I’m negative. I have heard of false negatives, I’m pretty sure I had quite a few, but I’ve never heard of a false negative afraid positive test.
Any help would be appreciated
Hi Frustrated - welcome!
There is a high percentage of false negatives with Lyme antibody tests.
Getting a negative doesn't really mean anything...except that your immune system hasn't mounted a response to the bacteria.
If you were positive before with symptoms....and didn't do effective treatment...and you still have symptoms...then you still have Lyme disease.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi