Recap - I have done 3 cycles of the Persister protocol.
Cycle 1 went okay - but kidney function suffered (GFR and Creatinine). 1 1/2 weeks later, the KF normalized.
Cycle 2 - crazy herx....or bad reaction - you pick. Almost went to the E.R. due to high fever, high heart rate and full on body pain...and a reaction that seemed seizure-like. My arms were jerking and I couldn’t stop the movement .
Kidney function off again. Normalized after about
Cycle 3 - Only did M/w/F persisters instead of the 5 days. Tolerated it better..
Kidney function - suffered again. I haven't retested but will this week to see if it's back on track.
Am doing Alinia this week and cycle 4 starts on Monday again. (with the Dapsone/Daraprim/Rifabutin)
I called the J clinic this morning...asking if I should risk doing this to my kidneys again. How many hits can they take.
The triage NP said she'd pass this on to Dr. J tomorrow morning...and she should have an answer by the afternoon.
I thought I might stop regardless what they say.....but I have had about
7 improved days in a row...this has never happened. I'm feeling confident that I am getting close to remission.
Scared to take them again....scared to NOT take them and lose the grounds I have made.
I could do the treatment without the Dap/Daraprim...I don't know for sure they are the reason for improvements...it could be the Rifabutin...but I don't know.
I'm thinking one more round...just one more...my kidneys can handle it...but then I change my mind...back and forth.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
Post Edited (Girlie) : 11/6/2018 6:38:53 PM (GMT-7)