Hi! so I'm not sure who Dr C in NY is. In regards to the other two, Dr J seems to be more aggressive with therapy than Dr P. Both are good imo but in different ways. Dr J is ideal when it comes to babesia, and I think Dr P is especially great for bartonella (great in general too, he is extremely smart and flexible in his strategy/thinking).
That said, when it comes to an ALS dx which may be lyme/infection-driven, I'd personally want to see Dr P. The reason is he is more conservative with therapy initially, and for seriously symptomatic patients of ALS variety I think one should consider a very very conservative approach, at least initially. This is based on some of the anecdotal stories I've heard, some patients with advanced neuro-involvement caused by infections can have extremely severe herxheimer reactions.
Are you familiar with Dr Dave Martz? he was diagnosed with ALS but found out it was caused by lyme. Pamela Weintraub wrote about his story in her book "Cure Unknown." Reading that chapter might provide some insights? I certainly think it's a good idea to check for these infections and see how your father would respond to antimicrobial therapeutics. I wouldn't be surprised if down the line we find out that a (large?) subset of ALS cases are driven by polymicrobial infections (including tick-borne infections). Most MDs will laugh you out of the room when you bring up this hypothesis.
Thank you for your response. Yes, I’m familiar with Martz. That’s part of what’s convinced me that my dad may not have ALS. Dr. C is Daniel Cameron. I’m posting his name now because he is very active in Lyme treatment and research. He has patients from as far as Australia. He doesn’t hide the fact that he is a Lyme doctor- just look at his website, FB page & Twitter. I was referred to him by a doctor in PA.
Tick discovered: summer 2010
Neg for: Lupus, RA, Fibro, CF, MS
IGeneX labs run 10/2014 (thank god!):
IgM WESTERN BLOT:
IGENEX IGM RESULT: POS
CDC/NYS RESULT: POS
+strands : 39 & 41 kDa
+strands: 18, 28, 31, 45; ++ : 41; IND: 39, 83-93 kDa
Treatment started: 11/18/2014 w/ 200mg Minocin & 100mg Diflucan. 2015: Minocin & Tinadizole. Pain subsiding; tired.