Well I just wanted to update on the CIRS - finally got a response back from my LLMD. He wants me to do some research into some of the different testing. One test he recommended was VCSTest . com. Has anyone else done that? According to the test my left eye has a biotoxin score of 15/18 and my right has 13/18 for a total of 35/45 or 78% positive. So feeling pretty strongly about CIRS being a part of what is wrong. Is there any test y'all would recommend is worth the money? For now I'm on alinia, azithromycin, nystatin, probiotics, milk thistle and some really great vitamins. Just switched to the 1st two and already I have noticed what I hope is a herx and not just a side effect (stomache ache/nausea). So we shall see.
P.S. Girlie-hope your cat is doing better.
I wanted to check in to ask how things are going with the mold BookWyrm.
I'm very slowly looking into this as well. I just came back from doing a C4a test - there are a few others that are better indicators of CIRS / mold but this was the easiest one for me to access. I've also sent off a swiffer sample to Mycometrics to get an ERMI done for the house. These seemed like the easiest first steps then I can decide how serious things are and what to do next.
There are two urine tests for mycotoxin exposure - one from Great Plains and another from RealTime Lab - and I'm not sure about
whether they're worth the extra effort once I have the ERMI report in hand.
So far I've found the blog http://biotoxinjourney.com/areyoumoldy/#labwork
has lots of good info.
In the section I've linked he mentions the blood test options and on the c4a says
"only 72% of cases had high C4a (>2850 ng/ml) while 89% had low MSH (<36 pg/mL) and 91% had low VIP (<25 pg/mL). This means that perhaps C4a isn't the best lab to look at if you're only going to pick one. As such, I'm torn between C4a and VIP. I like C4a from the standpoint that it's a nice marker to be able to monitor progress (VIP will always stay low regardless of inflammation levels). On the other hand, VIP has a higher correlation and based upon the new Physician’s Order Sheet (Updated 06/20/2014), VIP has gotten a bit easier as a blood draw for phlebotomists. This just brings to the fore the fact that no one marker can be used to diagnosis Biotoxin Illness."
Hoping this bumps things up so you get some good info from the mold experts here.