me too. I am losing faith a bit and a bit unsure what to do other than keep on the csa and wait. I did just make an online telesession appointment for 2 weeks out for the great doctor who cleared my air hunger 2 years ago-- he switched clinics, was in between clinics- and is now just offering telesessions until his new clinic
opens but his clinic is hafway across the country from me and I cant afford to do the trip-- so hoepfuly my issues will resolve before the session in 2 weeks ( been 7 weeks straight so far of this) bt if not maybe he can help direct me. I am so tired of feeling restricted in my breathing and of putting all my time, energy and money into trying to get well. What a waste of a life this is when I feel so debilitated. It is so depressing. and scary.
Also, I saw my local doctor again yesterday. He said he is sure I do not have asthma or copd, and almost sure it is not a lung infection of any kind. He doesn't think I need to do the PFT, he said just by listening to me he can tell there is no obstructions. So that is good. I read this article yesterday talking about
babesia breathing troubles: http://jillianaugey.com/index.php/2017/07/17/babesia-what-it-is-symptoms-and-treatments/
and she was saying how the breathing issues do not come at all from the lungs, but rather from the blood cells being malfunctioned by the babesia, Which I sort of knew already. But it is weird that I had bloodwork done about
8 weeks ago and all my red and white blood cell counts were fine-- as well as my iron. I also got tested for lyme and babesia- both negative, but I did read that there are over 50 strains of babesia and they only test for two. I am still puzzling this out. I almost got a telesession for 5 days from now with my good long distance doctor, but he only had a very few slots available and ust as I was in the process of booking, someone booked under me his one session for next week- so now I have to wait for two weeks! But at least I have him to turn to soon. He is the only one I have seen who has helped me with this, even though this is a different presentation of the restricted breathing than I had the other time. If this guy was my local dr and I could see him ay time I wanted life would be a lot easier but I am on the east coast and he is in the Midwest and I already spent way too much money in the past travelling to see him and cant do it again. plus it is hard to travel so far when I am sick. But really all that is wrong s my breathing is tight. I am not feeling too sick otherwise but this alone is completely taking over my life at the moment.
Post Edited (flowergarden) : 11/15/2018 9:30:00 AM (GMT-7)