Don't most doctors have protocols for things? You have pneumonia, you get a certain antibiotic for a certain amount of time, and then they re-evaluate. Same with most illnesses. I don't see this as any different. I'm actually reassured that they have seen enough patients to have developed a set of protocols to use as foundations. Before, I felt like a guinea pig, and it seemed like other doctors had little clue what might actually work. You may be sicker or more complex than many, but they will start with one of their protocols and then adjust based on your response. And he sees an especially high number of difficult cases. I know that a number of highly regarded LLMDs here in northern VA refer patients to him when they give up.
His reputation is certainly why i went to him but the nurse seemed a bit dumbfounded by my case when we first met. I asked her if they had ever seen a case like mine and her eyes got wide and said "brain involvement THIS bad, for THIS long, untreated? Haha, no" Dr M had a similar response to my brain scans and symptom list as well as duration. So, a little disconcerting but im hoping Dr J can figure it out. I guess that's why i have been sort of concerned at their confusion of not only my brain scans but also my failures at the stabalization med.s
Tomorrow i start the abx though so fingers crossed. That's what matters anywayI'm wondering if you have a more inexperienced NP treating you.
You could call now that you've had your initial consult and ask to be put on Dr. J's waitlist for your 2nd or 3rd appt.
That's what I did. I was 'lucky' that my NP left the office....and then the second one also left. (I guess I'm hard on those Nurses...lol) so - I finally ended up with Dr. J partly because of that.
Although I think RM has been there for quite awhile....
Re: maybe those of us who don't do the stabilization meds...or try them and get a bad reaction don't tell their practitioner. So, they think they're working for most...maybe?
Starting your abx tomorrow. You're just on a M/W/F right? I hope so...you need to ease into this.
Amoxy plus bactrim. The amoxy was good...but the bactrim gave me some skin 'spots' or 'lesions'...I ended up discontinuing...but it is powerful...so be expecting the bactrim to hit you hard.
The amoxy is gentle In my opinion. And the third is azithromycin? I found that one not too bad either.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
Post Edited (Girlie) : 11/25/2018 10:26:34 PM (GMT-7)