No mepron for babesia?
They haven't given me anything for babesia yet, im hoping they do soon because that is what im most curious about
Aerose91, if you want treatment for babesia, you will have to advocate for yourself. otherwise you will follow the same predefined protocol. which means you will have to make repeated phone calls, to try to get it done. otherwise you will be stuck with the same protocol for 3-4 months goin nowhere before you switch to the next one. you will have to make the process work for you.
thats one of the shortcomings. i was in the same boat, i wanted to babesia treatment, but they started me on their lyme protocol. but ultimately i found out what i really needed was bartonella treatment from my prior llmd, had i stayed with JSC, it would have been a year to get to bartonella which would have never worked for me, or months of fighting the their protocol to get where i needed to be.
just trying to give objective feedback about
the process. the people that are fans of JSC, always try to promote it, but there is always the perspective on the flipside. just like with any doc.SierraDon - Aerose has just had his first appt. I do not think he should be calling and pushing for Mepron at this point. He needs to have some faith in the system...in the clinic he has chosen. I doubt if they would acquiesce and change to a Babesia focussed protocol anyway.
The clinic has their reasons for starting with a lyme/stabilization protocol...before going into the full-on Babesia protocol.
My first protocol with the J clinic was Babesia focussed....probably because of my prior treatment protocols.
I did that for a couple of months...and then my second protocol was their full-on babesia protocol...which can be difficult to tolerate.
Yes, it will most likely be 3 months (maybe longer - depending on how he tolerates/reacts to this first protocol) before Aerose is prescribed the Mepron...
In the big picture - 3 months on a non-babesia protocol really isn't anything to be concerned about
IMO.Aerose has been through it quite a bit, for me it makes no sense starting the lyme protocol, from what i remember aerose has been on various other treatments that touch/hit lyme. it speaks to the inflexibility of the process.
why wait if knowingly that is why Aerose switched to JSC for a babesia focused treatment.? its just adding to the overall length of the treatment.Maybe because LLMD's all treat differently. What if Aerose prior treatment/protocols weren't what Dr. J figures is sufficient before adding in Babs meds? Dr. J would have to go through everyone's prior protocols and analyze them to see if it warranted skipping his protocols and going directly to babesia.
....he prescribes the protocols that he has had best success with...
Without asking Dr. J directly.....we don't know really....
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi