We got back yesterday. It was not easy, but he was able to enjoy many things. Cardiologist said no restrictions but stay hydrated. (They suspect POTS.) Rides did not cause him any problems, and he did his favorite roller coaster a couple of times. He also loved the motion simulator rides. We conserved his energy as much as possible so he could get the most out of his good times.
He felt sick in the mornings until he ate, and then he was ok most days until he got tired and then he suddenly felt very crummy again. He also came down with a cold as we arrived, which didn't help. We spent the last night in the ER after more chest pains, but they were able to confirm via blood testing that there were no enzymes released that would indicate injury to the heart. Our local ER didn't do that test. This was reassuring to him because he feared a heart attack every time it happened.
Anyway, we all survived -- a Lymie mom, two (I think) Lymie teens (one fighting nausea and bladder issues all week and the other with pains, fatigue and dizziness), a dad who had injured his back a few weeks before the trip, a 75-year-old grandma with a walker, and a 6-year-old who had the best week of his life. Lol. What a crew. We all did enjoy it. I hope to take the boys back someday when my older son can enjoy it more fully.
Post Edited (Dahlias) : 12/30/2018 3:26:04 AM (GMT-7)