Ugh dr.j clinic!

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physedgirl09

Veteran Member

Joined : May 2017

Posts : 618

Posted 12/21/2018 5:37 AM (GMT -7)

i been feeling better... not great but def better... and i do like the pulsing and the breaks...ive only been there since april so im hoping as i continue, ill see more and more improvements

Symptoms since July 2016. Very mild: slight dizziness but nothing to call the doctor about.
February 2017=flu like symptoms; felt like i was dying from February to June. Tested positive for active EBV.
June 2017= tested western blot: reactive lgm 23 lgg 41 & 66
Started ABX treatment in June to present with llmd
functioning at about 70%. determined to get to 100%

Rikky1

Veteran Member

Joined : Jun 2015

Posts : 3046

Posted 12/21/2018 7:32 AM (GMT -7)

i've been seeing Dr. J for almost 2 years. during that time i can say i'm definitely better but i've hit a wall the past 4-5 months and i just had my last appt on Tuesday. Dr. J doesn't have any more answers for me he didn't say that but he did say i'm surprised your nerves haven't healed more as you've been on the protocols long enough.

His answer is to keep taking my nerve meds, doing 1 week every 6 weeks of the protocol and see if my body heals.

Can't say I was too happy with that prognosis but I expected it given not everyone gets to 100% with Dr. J or anyone else we're all quite different.

dbwilco

Regular Member

Joined : Mar 2016

Posts : 361

Posted 12/21/2018 7:48 AM (GMT -7)

rikky, could i ask which nerve meds?

Rikky1

Veteran Member

Joined : Jun 2015

Posts : 3046

Posted 12/21/2018 7:58 AM (GMT -7)

gabapentin and trileptal. both have been life savers but now i appear to be stuck on them for the foreseeable future.

physedgirl09

Veteran Member

Joined : May 2017

Posts : 618

Posted 12/21/2018 8:17 AM (GMT -7)

rikky- do you have nerve pain or are your nerves like shaking?

have alot of your other symptoms gotten better?

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