High D Dimer (blood clots?) and hard to breathe like elephant is on chest

So sorry you two have this to worry about.
I hope the CT rules out a clot.

I have read that high D Dimer isn’t mean for sure there’s a blood clot.
I hope this is the case for your wife.

Please let us know the outcome

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Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

The breathing issue started in the last 3 days. The only real thing she has done differently in the last month that we can think of is LDN. She actually was taking potentially too high of a dose of Naltrexone to call it LDN really. She was taking about 13mg of Naltrexone (due to breaking up the full dose at home as opposed to having it compounded at a lower dose). When I found out about that I mentioned she may want to stop it until it's a lower dose, as I did it for 1 night at that high of a dose and felt super depressed the next day and symptoms flared up. No clue if this has anything to do with that though. I just saw there was an old thread talking about how blood clotting and thick blood may be more common in Lyme patients.

Thanks everyone for help.

The tests just came back all negative. Weird that D Dimer came back positive about 8 hours early. I'll have to look into that. Maybe a test with too many false positives?

Astroman - will potentially look into those gene tests.

I'm still hoping it's good news. But my wife doesn't have much trust in the doctor, as the doctor dismissed her based off the test result of another patient at first, but then still said she won't die tonight.

Looking more into D Dimer test.
Luckily for me my pubmed-kung-fu is strong due to Lyme Disease research.
https://www.sciencedirect.com/science/article/pii/S0422763813003166

Looks like D Dimer alone is not 100% sensitive for Pulmonary Embolism. Which I think would be the leading hypothesis based on the original D Dimer positive and the sudden onset of shortness of breath and chest pain. It's recommended to combine D Dimer with PetCO2 in the study above. But that PetCO2 test was not run. She will follow up at urgent care again tommorow.

Also finding out that the majority of Pulmonary Embolism cases are diagnosed postmortem, it doesn't make me feel very confident that all is clear yet.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3767072/
They did an analysis on cause of death of people who died of PE. It turns out only 31% of those cases was PE even considered as a diagnosis.

I did a search on the forum. Many postings about the same feeling of an elephant sitting on chest.

Just put "Lyme feels like elephant sitting on chest" in the search box and they should come up.

I hope this helps .
Please take care and tell your wife I hope she gets some answers soon.