“We are doing a 2 week on 2 off protocol with dapsone, daraprim, lactoferrin, xylitol, clindamycin, minocin, augmentin, flagyl, diflucan, enula, cryptolepsis and a 1 day parasite challenge with ivermectin.”
That’s almost identical to my Persister protocol. But mine incorporates Rifabutin for Bart. And instead of augmentin I have Ceftin.
You only take Dap and Daraprim for one week - right?
My week 1 is different than my week 2
I wasn’t given Ivermectin - instead I got Alinia.
I wonder if there’s a reason for doing one over the other.
I have loved my appts with Dr J. I feel I am in good hands with him.
I'm not sure... I assumed she was doing alinia. IDK why they choose one over the other? I think alinia is more broad spectrum, hits babs, and viruses as well. Not sure...
My week 1 is like this:
MWF: Augmentin, minocin, dapsone, daraprim, mepron, enula, crypto.
Th Sat: Flagyl diflucan
Im glad you feel in good hands! I do too. And you have made decent improvements too right? I can't say enough good things about
KF. She is incredibly sharp and a fast talker. Her brain puts together complex and intelligent dialog just as fast as her lips will flap lol. Mine sure doesn't. I have to slow down and think about
things before speaking or I have a loss for words every now and again. Maybe it's lyme or maybe it's just the way it is. I feel maybe a tad slower (like 3%) than usual, but a lot of the time i just contribute that to lack of sleep because sometimes these infections prevent me from sleeping well.
I can't wait to see what happens during this first cycle on the protocol... I like the pulsing because it helps you recognize patterns. When you are on meds all the time you can't tell what is a herx and what isn't... or it is much harder.==============================================================================
I have made some improvements, yes. I had plateaued for a long time prior to switching to the J Clinic.
I'm waiting to see what my baseline is now...as I finished meds last Friday .... but still not back to feeling better yet.
I have heard a lot of good things about
KF. I was going to try and get her as my NP, but I ended up with Dr. J himself...so I think i'm good with that. LOL.
(altho I guess I should be prepared for them switching me to someone else)
Oh - I just noticed - you're only taking the D and D M/W/F? I took it 5 days straight with the other abx (Rifabutin and Ceftin) only M/W/F.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi