Mister Mike said...
Thanks Girlie! Are you on lots of supplements to mitigate the side effects of dapsone and the others? If so, what? Where would my doc (or I) find the protocol info?
I don't think there's anywhere to find the protocol I'm on. It's ala Dr. J.
I take Folic Acid with Dapsone and daraprim. I think it's the Dapsone that blocks folic acid synthesis. I had my level tested prior to starting the protocol and take folic acid with every dose.
Other than that - not on anything specific for that protocol.
Maybe there's some info on the Dapsone - in this study (ignore the reference to 'post treatment lyme disease syndrome')https://www.omicsonline.org/open-access/the-use-of-dapsone-as-a-novel-persister-drug-in-the-treatment-of-chroniclyme-diseasepost-treatment-lyme-disease-syndrome-2155-9554-1000345.php?aid=71596&view=mobile
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi