I think that Burrascano finally has accepted that chronic coinfections symptoms are in fact an active lyme disease... Once lyme is under control if you have any coinfection, your inmune system will deal with it...
Why are you writing as if he questioned chronic infection in the first place.... He was one of the first Lyme Literate Doctors to use Dr. MacDonald's culture test to evaluate the persistence of borrelia... He himself contracted lyme and treated with high dosage of antibiotics, there's a reason why some call him the Godfather of Lyme like someone mentioned in this thread.
Oh I get it, you're suggesting that he didn't evaluate coinfections properly, like babesia. I'm sure he didn't. Again, different decade, did you listen to what he said, they didn't even have a drug candidate to treat babesia. And the one that they did caused you to have diabetes.
Look OriolCarol, we're just starting to realize the role biofilms and persister cells are to making this infection chronic. As well as the coinfections, that new Yale study suggested that majority of antiparasitic drugs failed the test at eradicating Babesia.
Many that are still suffering from Chronic Lyme almost a decade later are still not in remission, possibly due to Babesia, Bartonella, and possibly other coinfecitons that aren't picked up in blood work. I always have responded to most antiparsasitic drugs, there's studies showing that some of these antirparasitics help dissolve biofilms and
open up round body forms, but without a doubt I know I have Babesia. Considering some of the red spots that pop up or how I herx when I treat with something like Alinia.
I never was properly treated for Babesia, I had my first breakthrough when I treated with flagyl, malarone, and zithromax. But I suspect the Babesia keeps coming back after I relapse or something else happens when I lower my immune system when working out, like Dr. B suggested.
I really suspect this tafenoquine drug is going to be a game changer for lyme patients, ILADs posted about
it in August of 2018. https://twitter.com/ilads_lyme/status/1025350772765151232
But you seem to be spot on to what's going on with treatment of Lyme Disease and how even to this day, despite what the leading Lyme Literate Doctors and Scientists are saying, other so called LLMDs are saying the Disease is staying chronic because of this or that.
I call LLMDs and alternative doctors out on it, along with patients, but then I get chastised for it... Either I'm not being nice enough or some people like are asking me what have I contributed to the thread. Read this thread...https://www.healingwell.com/community/default.aspx?f=30&m=4092052&p=2
There's a lot of lyme patients with the mentality that think every type of treatment helps and that there isn't one treament that doesn't work, never think that some are making thousands, hundreds of thousands, and taking advantage of Chronic Lyme patients.
When question some things, like this mast cell activation syndrome.... I'm then considered Envious and jaded, as well questioning her Doctors claims that her remaining symptoms are from mass activation syndrome, yet this 20 year old girl is saying she's in remission despite only being at 70-80%.
Yeah, I'm an envious and jaded guy... Yet I'm here constantly press the issue on biofilms and persister cells, what the leading researcher and scientists are saying, while others are saying Stevia doesn't absorb well into the body because a Herbalist said so... Meanwhile this is the top herb Dr. H is using with his persister cell antibiotics like Dapsone.
Then I say I've been in treatment for 9 years, someone says I'm doing it wrong...
There's only so much you can take of this and as you've seen, Dr. B has left the scene for quite sometime, why you think that is?
All I do is try to question some of the things said within the lyme communtiy and someone says I'm alienating myself...
Fwiw i appriciate your cynasism and cautious words ... and for pointing out how i type like im texting to friends in a stream of conscience style. I choose not to alienate
All I can say is, this video from Dr. B could of happened at a better time!!!
And getting back to that new parasitic drug tafenoquine, yes it's going to probably help probably millions of lyme patients just as it's going to for malaria infected patients. I think I remember some saying that Malaria is the deadliest disease in human history
Video - https://youtu.be/5lwydx1-gni
It's bad... But what happens when you combine a chronic bacterial disease with biofilms and persister cells, with some sort of Malaria like illeness?
I already know what others are going to say, what about
the side effects and tolerating the drug? Just like so many patients said when many were having a lot of success with Dapsone. What's funny is, I see so many trying the drug Dapsone now after they've reached the end of the road with their disease.
Just like the Doctor said who critisized ILADS in their Twitter post... Ask yourself this, so whats your other option, living with Lyme and Babesia for the rest of your life?
Dr. Remington Nevin said...
There is no evidence tafenoquine or other 8-aminoquinolines are effective for these indications, and these drugs carry significant risks of iatrogenesis including potentially permanent CNS toxicity. Prescribers should excercise extreme caution in considering any off-label use.
I wish everything was peaches and cream where you can take one herb or use a rife machine and you'd be cured of this horrible disease. But if these alternative treatments cured lyme, they would of done so decades ago... Along with other persister cell diseases like Leprosy, AIDs, and Tuberculosis.... Which might I add, was always snake oil behind the scenes...
Sadly, why isn't Dr. Remington Nevin hounding the CDC and IDSA Doctors about
the millions of lyme patients dieing and suffering over Chronic Lyme, instead he's warning about
the side effects from aminoquinolines drugs... I get it, drugs like Coartem have severe side effects. Well so does Chronic Lyme, people are dieing.. Not to mention the millions that go undiagnosed or misdiagnosed and given a death sentence with a Lupus or Parkinsons diagnosis.
We need to start questioning, why Dr. Remington goes out of his way to question ILADS, meanwhile IDSA and the CDC is getting a hall pass. Why are Doctors that endlessly supply opioids and over 115+ Americans are dieing every day from them, this wasn't happening before? Why isn't Dr. Remington going after them instead of ILADS who is trying to help lyme patients.
Right now, there's a fight and struggle to about
the science and truth surrouding Chronic Lyme, as well as other things, like Climate Change. There's so much propganda, disinformation, misinformation about
these controversial topics. You can't even mention them right now in the room without someone's eyes rolling, just like Mandy Hughes said in the Under Our Skin 2 documentary.
They originally wanted to change it to borreliosis, to get passed all the crap surrounding it... Guess what they had to do with Global Warning, it's now called Climate Change. Why? Well because big oil corporations paid off a select few of scientists, lobbyists, politicians and corporate owned media to spread lies and cast doubt in the subject.
Yet what ya know, lol, some scientists are saying that Lyme Disease is the first disease epidemic of Climate Change. Go figure, some still think there's no connection and it's just fake news.
I think that some llmd are very interested in make things more complex to personal benefit... so people think that the problem is so so complex that they have to be under a llmd with complex protocols....
Yes... By the way, Yes, Yes, Yes, Yes, Yes, Yes, Yes, Yes, Yes, Yes....
Post Edited (Charlie55) : 1/3/2019 2:55:09 PM (GMT-7)