running wild said...
At this point, I could write a book about the kidneys and Lyme Disease.
My GFR has been in between 50-59 for about 5-6 years, at least. Rather than go into a lot, posts I put up about the concerns can be found in the search area "Lyme kidneys, GFR." The doctors think blood pressure over the years has caused the problem, but I didn't have high blood pressure when the GFR was at 59 about 6 years ago, or had not hand it long.
The nephrologist, who is 81 and seen it all, says not much has changed over that time, except I have some protein in urine now, which only shows up on a 24 hour urine test. Random tests are negative for it. Also "borderline mild" change in kidneys.
This not to put fear or paranoia in anyone, but to stress it is important to see what is going on, what is causing any off numbers and to closely monitor GFR and creatinine , as Girle is doing. For years, doctors just told me it's not uncommon with Lyme Disease. Looking back, I should have had the presence of mind to ask "Why?"
Know cutting back on protein, especially animal protein, is important, which is tough because we already are restricted with Lyme diet. Same with potassium, as also mentioned by Girlie. Same for phosphorus and a number of other items that come with food.
Most people do not find out they have kidney problems or potential ones, until their GFR is below 30. It's good to know earlier, find out the cause and do what needs to be done to be safe with it. This doesn't mean anyone with a low GFR and high creatinine has chronic kidney disease. But it provides the opportunity to find out what is causing it and what can be done.
It's been my experience doctors don't take early indicators as important. The earlier you get answers, the better. Again, not to scare anyone, but to be safe. Jb94 - you are smart to look into it. And water retention can have a number of causes - not just kidneys. Some meds can even cause it. Knowing will help your mind.
You’re right - often no symptoms until the gfr is less than 30.
Because of that I’m surprised that yearly gfr testing isn’t a yearly screening test for everyone.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi