BTW, why might someone not want to do cholestyramine? I'm not familiar with the issues involved.
Excellent question. IMHO, most people SHOULD want to do cholestyramine, at least for a month or more. There is no other binder that will work as fast or as well.
1. need to be out of mold and mycotoxin exposure or you can get horribly worse
2. Shoemaker found those with Lyme or MARCONS got significant symptom exacerbation on it and recommended a low amylose diet and fish oil for a month prior in those with MARCONS and treatment for Lyme first for those with Lyme.
3. Shoemaker’s dosages for CSM are like Buhner’s dosages for Lyme - seem to be way too high for a lot (but not all) of people.
4. The regular Rx has loads of sugar. The sugar free Rx has aspartame. The pure, custom compounded Rx is $$$ and I don’t think most people’s insurance covers the pure.
That said, I know there are some who have posted in the past here who swore by cholestyramine (the pure, custom compounded version). It has helped many people, including some with Lyme.
#2 above - Shoemaker acknowledges Lyme and babesia toxins as CIRS. However, if you read his statements on survivingmold, you will probably come to the conclusion that he sees Lyme treatment from an IDSA perspective. He says if patients get worse on CSM, check for Lyme. If they have Lyme, treat the Lyme for a “reasonable” amount of time. Then treat with CSM.
There’s also the issue with how do you know when the Lyme/co has been fully treated if the patient is still symptomatic? Are they reacting to infections or to the toxic byproducts remaining in their systems? I watched the video of the Canadian couple with the wife who had severe Lyme symptoms. She improved for a few weeks on abx and then got worse. As a final try to help her, the doc tried CSM, and that got her to recovery. Something to really think about