My 17yo daughter has been ill with so many symptoms since feb 1. Multiple tests have ruled out illnesses that drs can think of. We are an hour away from UAB, a leading hospital in the nation, yet the drs find all is well with my daughter...except that it’s not. Neurologist, cardiologist, primary care, neuro opthomologist, etc.
We finally found an integrative MD who clinically diagnosed Lyme. Daughter has been on minocycline, azithromycin, and biocidin along with a pulsed protocol of artimisinin for 2 1/2 months. We’ve not really seen improvement, unfortunately. Main symptoms are constant double vision, extreme body heaviness, body feels like inability to move, neuro things such as tingling, twitching etc.
I have tried adding in herbals but she herxes so badly. Dr recently added Bactrim as well but I think it’s harming her digestive system (new symptoms such as reflux, nausea etc)
Though this dr is great and is trying and is willing to research and learn, she states that she is not an expert. Not sure if we should continue here or find someone who has seen this all before.
So many symptoms of MS, I just knew that’s what she had. Wish we knew for sure how to tell the difference and could get a definitive test result for Lyme and co. Oh, she also has streaky red rash spots on her torso.
I need a recommendation for a good LLMD in the area or surrounding states, though we will travel wherever needed.
This is so hard to watch my daughter lay day after day and feel so sick. Y’all are for sure warriors and we need any guidance we can get. Thank you,
Hi Blakeley’s Mom
I’m so sorry your daughter is suffering with this.
I think - since your daughter has advanced symptoms (MS like symptoms) that a very experienced LLMD would be best.
She may not be responding because it’s possible/probable that she has the coinfection of Babesia. And sometimes it needs to be treated first before the lyme and other coinfections can be successfully treated.
Plus sometimes it can take longer than 2 1/2 months to make progress.
In addition to members suggestions for llmd’s - you can also email me for information.
Just click on my screen name on the left and my email will come up.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi