Posted 6/24/2019 7:36 AM (GMT -6)
It sounds like you have had all the proper testing done. It's pretty normal to be concerned about pain and changes in your body, whether chronically ill or not. And those of us with Lyme deal with that stuff on a daily basis. Please don't feel self-conscious about having perfectly understandable responses to what's happening to your body! That said, if health anxiety is a troubling symptoms for you (been there) then there are ways to help ease that. But I know this was not the point of your post....
I have pain in that area consistently, and I had fears of so many causes, including major organ issues, various cancers, and nerve entrapment. It was hard to figure out, because the pain felt somewhat deep and did not necessarily correspond to movement and muscle use, and it could be achy or sharp or tingly. It didn't correspond to eating except occasionally toward the end of the day when my abdomen would be more full. For me, hard though it was for me to accept, the pain is structural. My craniosacral therapists were able to identify inflamed liver ligaments and diaphragm tension, but no other organ issues. I figured out some bizarre stretches and had to change the way I sit all day long (noooo hunching or slouching! no reclining while holding your head up!). From deconditioning with this illness (maybe combined with something about the infections themselves...) my muscles in my abdomen are very reactive to use, and have started to cramp on the inner abdominal wall (hence not always corresponding to movement the way I assumed they would if the pain were structural in nature). Ligaments, tendons, and muscles all can get inflamed and very painful. Have you seen a bodyworker, like a craniosacral therapist, PT, or skilled massage therapist who can help you figure out whether all those structural elements are working together properly? Or help figure out where exactly areas of tension and imbalance are?
Obviously I cannot say for sure what is causing your pain, but I know I was very resistant to the idea that the pain in the same area being structural. (It really felt deeper and scarier.) When I saw the phrase "under my ribs" it resonated, because that's where the pain got the worst for me. Good luck solving the mystery!
Lyme, bartonella, babesia, mycoplasma, EBV
Mold, MCAS, POTS, CFS/ME, HPA axis
Herbs, AmpCoil, DNRS, diet, nutrients, EOs