Others have told you this in the past countless times, but there are many who are well without being on abx previously or for maintenance. For some reason, you discount these people - like you have said above, these people are "lieing" or "sugar coating". I'm not sure why you have a hard time believing this.
I'm sorry you can't digest the fact that people embellish treatment like Rife Machines, Herbs, MMS, Vitamin C protocol, laser therapy, etc... But there's thousands of posts saying they've cured themselves from these wishy washy protocols and it couldn't be far from the truth.
I recently read a old post one LymeNet.org about
member that thought he was going to cure himself with high doses of iodine, later he was found dead. And many of the members said it was probably the over usage of iodine. He had come up with this notion that high dosages of iodine kills borrelia and that he was going to cure himself. You know if James had Hashimotos, all he could of been doing is raising his antibodies and while he might of been feeling better because his thyroid was producing more hormones, giving him more energy, his immune system could of been attacking his thyroid as well as other parts of his body, then his body eventually just shut down. RIP, but stuff like this happens all the time.http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/68826?#000032http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/68754?#000000
I've given great examples in posts before backing up what I've stated, even talking about
when Charlie Sheen and his own Doctor claimed they cured aids.
How many times did Yolanda Hughes claim she was in remission, when really, she probably never was in remission. Ya know she's been treating with Dr. Klinghardt who has some sketchy protocols.https://themighty.com/2018/10/yolanda-hadid-remission-chronic-lyme-disease-relapse/
Everyone's basing their remission status on how they feel, since there's no accurate bloodwork test to show if lyme is still active in the body. I think I have a right to question that!
If you want your message to be heard, alienation is not an effective communication tactic.
Look, when people get chronically sick, many wish they think they're unique and developed a cure themselves. It makes themselves feel better about
themselves. And really sometimes the truth hurts sometimes when someone goes on the forum and tells you that this is going on a lot. I mean look, many lyme patients won't even acknowledge the truth about
the biowarfare side of this disease, yet now it's on all the major news websites. One member on here said if the government created lyme as biowarfare, then they must of created time travel as well. I'm sorry some of you don't want to hear my side of the story and you think I'm alienating myself bringing up these issues, but I have a right to give my opinion based on my 1st amendment rights, just like all you have a right to say you've cured yourself with rife machines, etc...
I know many people of religion also tend to go down the route of alternative therapy and while some you may think I'm against that, I'm not. I just think that many stories are embellished, I'm a big advocate of medicinal marijuana and even herbs. Just recently I went to see a osteopath in my home state, Dr. Z in Romeo Michigan, you know what he said, I'll have to start going to "his" church in order to fully heal myself or its never going to happen, lol. I can keep going to all different doctors, but I'll never heal myself until I take on faith!
Now is this right? Considering I've only seen 3 LLMDs in Michigan and not the top lyme literate doctors out of state like Dr. J or Dr. S in DC. Or even Dr. H in New York. He's trying to say he's basically the only best Doctor and that if I don't keep seeing him and go to his church, even if I see someone like Dr. H or Dr. J, I still won't get better. Seriously? This what the guy said. All I really went to him for is a full lab markup on my Vitamin levels, Thyroid, and Testosterone because he's an osteopath, regular doctors aren't so willing to test your vitamin levels. Yet he was trying to force all his ideology on me, both religion and his alternative treatment protocols.
This is what goes on, there's a lot of superstition with this disease, deep down you know it 1000Daises and many others, considering what you said in a recent post questioning the Kinesiology and Cold Laser treatment at Sunshine Clinic, the truth is there's no science backing up whether or not these alternative treatments actually kill a borrelia infection, let alone the persister cells, biofilms, and hard to kill coinfections like bartonella and babesia. And like you said, "practitioners are seriously over charging for their services, and it is greatly disappointing." Chances are their reviews are also embellished and even the remission tales... Why? Because they're making a lot of money from it... I'm sure even Dr. H and even Stephen Buhner embellishes how many actually get healed from there treatments as well because they're trying to sell books. https://www.healingwell.com/community/default.aspx?f=30&m=4011629
I have gone to alternative medical practitioners who have helped many others. But yet, they failed to help my kids in any meaningful manner. I often wonder how they helped so many others but yet not us.
The important thing is whether they help you or not! Honestly, $1500 isn't that much compared to many of the other treatments that we've personally tried (or not tried). If it works, it's well worth every cent. If it doesn't, it was a very expensive experimental failure. And you really don't know until you do it for yourself.
(BUT I do totally agree - some practitioners are seriously over charging for their "services", and it is greatly disappointing.)
You know I wish I had money to go out of state to see the top Lyme Literate Doctors, but I don't. So just like you, I'm either stuck with buying antibiotics overseas, which I've been doing for the last 4 years or treating herbally, which I'm now doing.
And really, I never said cures don't happen, I do think it happens, but I think it most likely happens under the treatment of the top lyme literate physicians. The disease has become a lot more resilient due to the 3 Bs: Borrelia, Babesia, and Bartonella. The chance of remission has become rarer due to ticks contracting more pathogens in modern day and unless you're treating all three infections, it's going to take a very long time to reach remission, for instance Amy Tan's case because she fully went down the herbal route, it took her about
20 years to fully heal.
Again, there's other veteran members like TF that give their honest opinion on forums like LymeNet.org, it's not just me saying this. And what ya know, TF has been chastised on LymeNet.org for giving his opinion and was told to tone it down. Look curing Chronic Lyme is a tough task.
Lyme is VERY difficult to cure for an average lyme doctor. You have to get to someone good. People have told me that in their lyme support group they know no one who has been cured.
Everyone can believe what they want 1000Daises, I'm not pressuring anyone into believing what I've said, it's just my opinion, maybe I am wrong and I'll admit that at times. Again, sadly you think I'm alienating myself, what I think it really is, I'm saying scary things that you don't want to hear about
a lot of lyme patients embellishing their remission tales like Yolanda Hadid and Charlie Sheen did. If the celebrities are doing it, guess what, the average person is doing it too.
Yet people are paying thousands of dollars out of their pocket to get these very questionable treatments. I bring awareness to these topics and people get mad at me for it, saying I'm alienating myself. The truth is, the doctors who are embellishing the treatment and charging astronomical prices are the one's alienating themselves from the lyme patients, not me. All I'm doing is questioning the treatment and remission claims, which I have a right to do so...
Healingwell lyme forum has been around for at least 10 years - not sure how long other forums have existed.
Girlie I've just made that remark suggesting it to Astronomer because I think he'll find different view points from "veteran" members on a forum like LymeNet.org because that forum has been around since 1993. Don't take offense to it, HealingWell.com is a great forum, but I think it's safe to say there's a lot of new lyme patients on Healing Well. There's a lot of lyme patients on LymeNet.org that have been dealing with the disease for all of their life 10-15-20 years plus. Sadly, the LymeNet.org forum isn't as active as it was when I first contracted lyme 10 years ago... But I think you can still learn a lot from veteran lyme patients and not make the mistakes they've made in the past by using the search box, hint hint.... Especially those that have tried many of the alternative therapies and they didn't work.
Just a thought, considering this guys name being Astronomer, he might like hearing what I have to say, me taking the more scientific side and not the alternative therapy/religious side route. I'll admit, I'm agnostic, but I've grown up in catholic school from grade school on my way up to college,. so I've heard and seen a lot. I still have
open mind in God, even believe in things such as ghosts, after life and the paranormal, but I tend to lean towards looking at thing scientifically, I just can't ignore how things like slavery were once justified under religion, along with numerous wars, and many other superstitions that go along with religion. I don't like hearing religious Doctors that say, you have to have faith and spirituality in order to heal from a chronic disease. These superstitions have gone on long enough in this country, there's many of us sick and tired of it. Considering half the country doesn't believe in climate change because of their conservative/religious beliefs, yet it's the 97% of the scientific consensus. One of the major elements that helping the spread of lyme and ticks due to milder winters.
We all need to be respectful to each other beliefs 1000Daisies, just because a person has a different ideology doesn't mean I'm alienating myself. I think if you met me in person, you'd be surprised how
open minded I am to the things you believe in, I just don't like it when religious people use religion to justify their ideology.
Post Edited (Charlie55) : 7/18/2019 3:35:37 PM (GMT-6)