Posted 7/29/2019 2:34 PM (GMT -6)
Nathan's book Toxic talks about MCAS a lot as the number one thing to stabilize before addressing mold or anything else. There are tests, but I think most of the time it's a symptom-based diagnosis. My LLMD and nutritionist did not even discuss testing. A low-histamine diet and quercetin made a big difference for me, and both are relatively easy and cheap compared with many things we try with these illnesses! I take a ton of curcumin to keep inflammation down in general, too. My LL nutritionist strongly recommended Ortho Molecular D-Hist and homeopathic histaminum, but I didn't find them necessary after the dietary modification and quercetin. People definitely take other things - freeze-dried stinging nettles, loratadine, famotidine, perimine, DAO, Allqlear. And prescriptions: Ketotifen, cromolyn sodium.
I'm not sure how to tell for sure what's related to leaky gut and what isn't, as I think the conditions overlap and reinforce each other.
Histamine diet cheat sheet: NO fermented food, canned food, leftovers, dried fruit, pickles, yogurt, alcohol, kombucha, tamari, miso, kefir, vinegar, soy, red beans, yeast, coffee, chocolate, pumpkin, curly kale, raspberries, plums, nectarines, oranges, strawberries, dates, cherries, spinach, tomatoes, mushrooms.
(I still eat tons of soy and kale without reacting, but fermented stuff causes swift and intense reactions for me. So your mileage may vary.)
I think once your system is more stable from treating MCAS successfully (assuming that's your issue here...) then you can address other stuff (mold, infections, etc.) and your system's balance will be restored. I don't think people have it forever.
Lyme, bartonella, babesia, mycoplasma, EBV
Mold, MCAS, POTS, CFS/ME, HPA axis
Herbs, AmpCoil, DNRS, diet, nutrients, EOs