I believe many on this board that are still struggling have functional issue(s) that they aren't addressing that is a road block to their healing.
This is me. Part of me feels disgusted by the two doctors I have seen -a Functional MD who had CIRS/mold and Lyme herself and a DO who treats tick infections and environmental illness.
I have had NO appropriate testing over 3 years of this journey until a few months ago at my request. I finally had an OAT test done and still don’t understand what it means. My doctor basically just reverberated the data on the results and recommended the supplements named by the lab report. I felt like the doctor probably couldn’t explain any of it the way I needed to understand it even if I asked.
I have had no genetic testing other than the CIRS HLA-DR of which I have the multi susceptible gene and the Lyme gene. I don’t fully understand the repurcussions of those genes either. Supposedly my body doesn’t recognize and remove biotoxins. This makes no sense to me. I assume the gene was only activated at the point that I became sick. Still, much about
it doesn’t make sense to me.
I have not had food sensitivity testing done.
I feel like a better doctor would have done more appropriate testing in the beginning to figure out why my detoxification is so impaired, what genetic deficiencies play into it, how to successfully supplement what is missing and get me functioning normally.
I feel like I’m just getting more broken and dysfunctional all the time. Soon I will have no money to do anything much.