My C3a, C4a, VIP, VEGF, MSH, MMP, IGG levels, VCS testing, Stony Brook Western blot came back indeterminate.
The WB was indeterminate. Are you saying the CIRS labs were indeterminate, too, or were they normal? Did you go by Shoemaker’s ranges for those and not the lab’s ranges?https://www.survivingmold.com/diagnosis/lab-tests
Had you previously been diagnosed with CIRS or have mold exposure at some point?
Is it crazy to think I should be focusing on something else with all these labs not pointing to Lyme or possibility it could still be causing all my brain symptoms? The latest person I spoke to said to try IV antibiotics but with these test results I just want to get other opinion if people think it’s worth it.
I understand your question. That’s a tough decision. Do abx make your symptoms worse? If they do, I would give pause as it could just cause further damage. I remember your other post. Your symptoms sound a lot like Aerose.
Have you ever taken Cholestyramine? If so, how much and for how long? What effect did it have on you?
Have you communicated with the CFS/ME group from paradigmchange.me? Do you feel like you have the ME stuff like they do?Thanks for trying to help WBF. I’ve just been pulled in so many different directions in the chronic illness world with 0 results and in the worst spot of my life so just trying to see if I can figure out what’s going on. So sensitive to any treatment that everything makes me feel worse so no idea what’s going on. I haven’t found a single supplement/ exercise/ med that I can go to if I’m having a tough time, to get back to a better spot.
I had mold ( Tricothecene) at one point. Treated that and my results came back 0 next time. All shoemaker labs came back perfect too so don’t think that’s the problem.
Thanks for the paradigmchange site. I’ll look into that.