I'll say this, that Dr. L is an amazing knowledgeable LLMD, I wish we hand someone like him in my home state. Some great questions and answers about
H: What about
bartonella? Did they have bartonella?
Dr. L: To the best of my knowledge, none of those 3 had bartonella, as far as I know.
Because I don’t have any convincing data to let me know it’s effective against bartonella, as you know for some of the patients bartonellosis is a big issue. One patient, where she was treated with treatment for bartonella along with the disulfiram, from her perspective she did not perceive that the disulfiram eliminated her need for further treatment for bartonella. It’s not a lot of data that I’m working with, some of my colleagues using disulfiram are of the opinion it might have effect against bartonella, but we need a lot more study on that.
H: Couple of questions about
bartonella. We answered most of these questions already. You think disulfiram has no known effect on bartonella? Some patients are reporting an increase in their bartonella symptoms while on disulfiram. Are you seeing this in your patients? Do you think this is a herx or bartonella reactivating?
Dr L: That’s a good question. As far as treating bartonella concurrently with disulfiram or not, from a certain point of view it makes it easier to do one thing at a time and see what happens. Some of my patients, even those who have bartonella, have opted not to treat their bartonella while they’ve been on disulfiram. I have two patients who had evidence of bartonella, and the decision was made not to treat the bartonella while they were being treated with disulfiram. They are having certain symptoms that had us scratching our heads and wondering whether those symptoms are not for Lyme, not from babesiosis, but from bartonella that’s not been treated.
H: Do you currently treat bartonella infections alongside Lyme infections? Or do you treat them separately?
Dr L: I usually have a discussion with the patient, give them the option: deferring bartonella treatment while we do the disulfiram since usually the disulfiram is for a finite period of time. With the understanding you can always go after bartonella later if it seems appropriate and necessary. Some patients declined to not treat the bartonella while we’re using disulfiram, and some patients have opted to defer treatment for bartonella. Some patients have gotten away with that and are doing ok with that, but it might be enabling the bartonella to be untreated for 5 or 6 months while you are treating with disulfiram. Which might not be a good idea.
So what, no questions if we'll still have to address mold, heavy metals, EMF, parasites?
I see another pro-alternative lyme patient named "NB protocol" that went out of his way to call disulfiram dumb and will cause liver failure in the comment section. Quite disturbing trend I'm seeing with the alternative community side of lyme when a possible cure is on the horizon which could end a lot of pain and suffering, yet some still won't accept it. Ahhh... Human beings tribalism and their egoes/stubborness.
YouTube - https://www.youtube.com/watch?v=8copz0yqghu
NB protocol said...
Using Disulfuram is really dumb. It is really bad for the liver and has resulted in fatal liver failure.
I just wanted to remark on this, because something like this has to be talked about
for the new patients that don't know what chronic lyme is, how the dominant coinfections play part, and how drugs like disulfiram works on waking up dormant cells and killing persister cells. I think majority still don't know what they're up against or understand it, some are even willing to reject it, and it results in many having a hard time deciphering whether they should be treating the coinfections/persister cells/biofilms or heavy metals/mold/EMF. There's just so much deceitful information out there and there's lyme patients like np protocol that will go out of there way to disinform people because something doesn't fit their ideology and they think they know what's best for the lyme community. Any time I bring this up, question what's said by some of the alternative or herbalist doctors, I turn out to be the bad guy.
I really hope we're starting to move in the right direction now, but I still think we have a lot of obstacles and it's not just dealing with the IDSA...
After treating Babesia on my own with primaquine and coartem in my state because of the 3 LLMDs not being knowledgable enough, I go to see one of them when my Bartonella pops up, and he tells me to see his church group for my bartonella neuro symptoms. And that I can keep going to different LLMDs, it isn't until I acknowledge faith and spirituality then that's when I'll heal from the inside out. This is supposed to be one of the top LLMDs listed by the Michigan Lyme Disease Association? https://www.mlda.org
Bottom line, I suspect even with new drugs like disulfiram, tafenoquine, and maybe Curza CZ-1-99... I think ILADS and the top LLMDs have their work cut out for themselves trying to educate the public, new lyme patients, even veteran lyme patients, and the lower level LLMDs on dominant coinfections, dormancy, persister cells, and biofilms.
A real eye
opener for everyone and it should be, so we progress with the treatment this disease and not backwards...
Post Edited (Charlie55) : 9/17/2019 4:59:25 PM (GMT-6)