So I started doxy 8/13 for a recurrence of tertiary Lyme that was dx'd back in 2014.
I lasted a week before herx and possible liver damage side effects started taking a hold. Messaged LLMD she said "well maybe we could start a different one or a lower dose, we'll talk at next appt."
Next appointment, I tell her what worked the first time and what didn't. First time it was Omnicef and Bactrim. And she says "well maybe you should go back on the doxy?". Or we could do Biaxin.
I told her my last LLMD took me off Azithromycin last time bc she noticed subtle heart inconsistencies after listening to my heart and changed me to Bactrim.
My current LLMD was like " Omnicef isn't really a part of my repertoire, let's try Biaxin and Bactrim." "Biaxin is only a problem for people with heart problems."
Well, I started 9/11 and 9/18 was my last dose. I woke up late at night by a seriously racing heart. It dawned on me what the problem was so I stopped the Biaxin and messaged my LLMD. Her response "well let's see how you do, and we can try it a lower dose later."🤨
Thanks to the suggestion of Girlie, she encouraged me to contact my doctor for a ECG. Contacted my GP and ECG indicated a "right sided deviation, could be something could be nothing to which here is a referral to a cardiologist." It also happened again on the night of 9/19 going into 9/20.
Both arrhythmias we're short lived but have never been woken up from a dead sleep with heart palpitations.
Two nights in a row was too much! I also read that Bactrim raises potassium and can also cause cardiac trouble. So I take my usual morning dose, I had already been off Biaxin 30+ hours. And was so scared to wake up like that again, decided not take the second dose of Bactrim.
Last night was no trouble. But now it's set back my treatment and herx symptoms stalled. I'm doing herbs, but not enough. I'm scared to try a new abx bc of my heart and my appt. isn't til 10/22 for the cardio.
I'm seriously questioning my LLMD'S "expertise" as well as her ability to listen to her patients. I told her what worked and what didn't and it seemed she keeps suggesting what is not working for me side effects wise. It keeps thwarting treatment. I hadn't done doxy before so I give her a pass there.
I will say, I am unusually petite. She's also pretty young. She did study w/Charles Jones, but I am skeptical.
I was fine during the day yesterday after taking my morning dose of Bactrim but decided to forego my evening dose.
Looking for guidance or suggestions. I know a forum isn't a replacement for advice from an MD. But so far, Girlie's suggestion was the best one I've had in a while!
What say you guys?
Post Edited (ElizKA26) : 9/21/2019 11:29:36 AM (GMT-6)