“Yesterday, I had a seizure at my GP. I was then, condescended by a nurse practitioner when I explained the cause of all of my symptoms. I was told I don't have a degree, that I'm on forums when I stated charities and petitions have been made regarding this illness. Further to that when I cited peer reviewed articles and research centres I was still told that I don't have a degree - so my observations are invalid. ”
What did your Dr say about the seizure?
So they have no clue what caused the seizure and are unwilling to accept that an infectious disease called Lyme is the cause?
I had the seizure after telling them my condition was worsening, had to walk to the practice (5 minutes away) I forgot where I was on 2 occasions. Then 3 doctors look at me like I'm **** on their shoe as I have a fit on the floor. It was disgustingly dehumanising. Then they threatened to send me off to a psychiatrist. The UK is as JovaLyme said, an increasingly horrible place to live, corporations and privatisation of so many services is to blame. I still find the US for profit medicine a horrible evil if I'm honest, considering the extortionate prices for treatments that shouldn't be remotely as expensive as they are. $2 Trillion a year on healthcare is a disgusting figure, but I digress (you can't put a price on life...)
A woman was sent to mental hospital and forcibly drugged for months before getting a positive test result back!!!https://inews.co.uk/news/real-life/woman-eventually-diagnosed-with-lyme-disease-was-sectioned-for-months-and-told-her-symptoms-were-all-in-her-head-501413
I'm just forgoing all the medications. I'm pretty sure propranolol was doing more harm than good and I am improving, fortunately. I'm just going to hope for the best and trust in God as many here do.I was in the UK in 2018 with my family and on the BBC news they aired a segment about
the terrible state of disarray the NHS is in. Many people falling critically ill and not being assigned a bed due to high occupancy of patients & shortages of resources. Sad!
In the US health insurance barely covers the lot and people will go into financial ruin due to high costs of health insurance.
While the rule is most run of the mill doctors (usually in affiliated with a hospital corporation) don't treat diseases like Lyme, you usually can find practitioners or clinicians all over the states that do tend to cater to folks like us.
You're usually better off in a well-known large city than small. I am not surprised by the NHS's narrow mindedness towards this. It's govt run healthcare. Which the rule with govt. run, "you get what you pay for or, for that matter, don't pay for."
While we don't have a single payer federal program, there is the Veteran's Administration Healthcare system.
What you're describing reminds me of our Veteran's Administration Healthcare service sadly. While their are many that are happy with their care through them. This organization generally doesn't have a good reputation. Most govt. entities aren't going to properly treat something obscure or difficult.
Gaslighting by doctors seems par for the course with Lyme.
Post Edited (ElizKA26) : 10/2/2019 1:50:25 PM (GMT-6)