"I have a feeling that because Disulfiram is so effective at killing the bacteria you could be experiencing significant die off as you say. The way I see it if this stuff kills bacteria, I'm going to suffer somewhat, but that is the price I will pay for killing this bacteria and eventually feeling well. ... What coinfections do you have? Were you taking any supplements or anything with it? From what I can work out you can take some NAC, but not a lot else while taking Disulfiram."
None of my tests returned positive. By the time I found a LLND, I was completely broke and out of luck. I was barely able to get to Portland to see my LLND. They were incredible and helped me when nobody else would. With my medical history and evaluation, they clinically diagnosed me on the spot. We did not do any co-infection tests, but at a later follow up my LLND said I probably do not or if I did, the treatment protocol would be the same. And my protocol was showing positive improvements. I think this was 2017, 2018, and my last visit April 2019.
So if I have co-infections I don't know.
Yes I am taking NAC every once and a while. At one point it made me sick, and some times it didn't.
I think you need a ___war chest ___ of detox products and protocols before taking Disulfiram -- anything and everything. If everything fails, my goto is to eat a bunch of calories to gain fat to temporary store them until I can get back to fasting -- which also works. My "go to" is Spirulina Tablets, NAC (sometimes), "Mint" Chlorophyll (apparently .. don't take this on Disulfiram), Physillian Husk fiber mixed in with Greek Yogart, Epson Salt showers (5 gallon bucket + 2 cups of epson salt, and a camping hose)... search this form and find out what other people are doing and have a half dozen strategies. Another one I am using is Vick's vapor rub -- all over my face, any itch, behind my ears, and neck.
I don't think you should take anything treatment with Disulfiram. Or any supplement. Something really weird
is going on, your body is already in emergency mode with lyme and this puts it in "over drive".
I would say get as healthy as possible with whatever treatment works for you first. Think of lyme as a bad roommate. Gain as much strength as possible. if you can't exercise, taking herbs and just moving blood around worked for me. I would take my tea (basically all of my herbs steamed, a dozen or so, with stevia) get on my stationary bike at the lowest setting and peddle for 45 minutes sometimes 1 hour to get the blood going. This gave me strength.
Also I should disclose that because I started this job I did take Amoxicillian for a few days before "just incase" and I started up my regular herbs -- oregano oil pills, garlic 5000mg extract, and black seed oil. I usually make my tea, but without stevia (mine contains alcohol and I have to wait 2 weeks for DSF to leave before using alcohol) it tastes really bad.
So just like project said, the herx isn't THAT bad. You can function normally. Just the feeling of "Hey, this is working!" gives you the spirit to deal with it.
I started at 50mg ... got up to 250mg a day before having to quit. I think I did 6 weeks. Once or twice a week I couldn't sleep. I can't afford that risk right now. Two weeks
I had fatigue on DSF but it went away after 3 days.
If you are inbetween jobs, if you are as healthy as possible (you can deal with lyme as a "bad roomate"), if you can establish all interactions with any herb, protocol, food, etc between DSF <-> whatever, if you can figure out the "load up" half life and your body weight, if you understand the precautionary principle, ... and if you have a warchest/good strategy for detox, I would say YES do it. Otherwise I guess we're at the point were we are waiting for the "experts" to give us the "OK" -- lol. Your call!
Thanks for all the info oregonhay,
After looking on the Facebook Disulfiram group and doing some more research, I am going to take Disulfiram at a very low dose to being with: 67.5mg a day and try and work it up gradually.
I've read that both NAC and glutathione can be taken with it and also work at reducing aldehyde, as well as providing protection for brain cells. For pain relief I've read great things about
Arnica and it is apparently safe to take with Disulfiram. I might also take Stevia to assist with biofilms. I have a powdered version that is raw. Tastes terrible, but it's completely free of alcohol.
That's it for meds and supplements. I read that you shouldn't take B12 with it, so I am going to stop that too. I will probably continue to take effervescent vitamin C unless I find research that says it's not a good idea.
I'm going to give bentonite clay a try for detox, together with activated charcoal and chlorella (although I might swap that for Spirulina). Will continue with enemas and epsom salt foot soaks as well. I might try bicarbonate of soda/lemon drinks too.
Still looking for a decent probiotic.
Were you taking herbal tinctures at the same time as disulfiram? I can't make that out from your post.
I am literally just going to take the disulfiram and nothing else "medicinal" as I don't want to overload my body. The NAC and glutathione are just for a bit of protection and Stevia seems to be harmless enough, plus it has a good effect on the brain apparently.
I'm just going to knock all gluten, dairy and sugar out of my diet too and see if that helps. Still working on the diet plan at the moment. Fortunately, I have knocked back the candida and I recently did a pretty intense liver cleanse, so I should be in pretty good shape for the detoxing. Doctor did an ultrasound on my spleen and kidneys a couple of days ago and they look pretty good, liver seems to be ok as well.
Will order the disulfiram shortly and I am ready to go once it arrives.
My biggest concern with dsf is the fact that it apparently damages mitochondria according to a study I read. However, you can reverse that with diet I believe. Antibiotics are known to damage mitochondria, so I guess dsf is no worse.
Post Edited (JovaLyme) : 10/3/2019 5:12:39 PM (GMT-6)