I guess you're right. I only found out after being repeatedly told that it was probably chronic fatigue syndrome 4 years ago. I thought nothing of the tick bite I had, checked google and was like oh it's not a problem... WRONG!
It's disgusting now that I think of it. Some poor sod's probably coming down with it right now and thinking exactly the same thing, probably will have their own journey threw this ghastly system and the total lack of concern from the doctors. Yikes...
I'm always trying to be optimistic lol. Realism is good too.
It is a very worrying situation.
Look how unwell we are because of the ignorance regarding Lyme. I'd never heard of it until this year when googling my MRI scan results brought it up. That was the first I'd heard of it and I am a 46-year-old man who would like to think of himself as reasonably well informed. I was basically the same as most people who I talk to about
Lyme. Some people I mention it to just come straight out and say they don't know what it is and others just kind of nod in a way that tells me they've never heard of it but don't want to look stupid by admitting that.
I was bitten by something horrible in Australia, got a very short course of antibiotics and within a couple of months or so was getting weird headaches and other symptoms that made me go to a doctor, but at no point did I think it could be related to the bite and fever a couple of months earlier. Never crossed my mind at all. I blindly trusted the doctors and their judgement, which proved to be a huge mistake. That won't be happening ever again I can tell you.
Until someone very high profile makes a very big fuss about
this I don't really see it changing. It was very recently that some top UK scientist gave a presentation stating that chronic Lyme doesn't exist and we've all got chronic fatigue syndrome! It bewilders me. Someone recently posted a case study on this forum about
a lady who died from chronic Lyme after more than a decade of antibiotic treatment and yet they still say it doesn't exist! This lady actually had it confirmed as her cause of death and she's not the only one. It's on people's death certificates as the cause of death. I don't get it. I thought doctors were supposed to be intelligent people?
I just hope this changes somewhere down the line because this disease is making lives a misery and killing people, yet mainstream medicine is completely ignoring it, misdiagnosing it and making a complete mess of the whole thing.