As many of us realize we have MCAS and try to stabilize it so that we can treat Lyme more effectively, I wonder which treatments people are finding the most successful. I'm also curious whether some symptoms of MCAS respond better to some treatments than others (i.e. a treatment might be more effective for gut symptoms than for skin symptoms). Please share which MCAS symptoms you experienced the most, what you found to be your worst triggers, which diagnostic testing you had done (if any), which treatments you have tried, and which treatments were helpful!
I thought I had mine very well-controlled until about
a month ago when my gut went nuts, so take this with a grain of salt, but in my experience:
Symptoms: Brain fog, headache, intestinal discomfort, fatigue, POTS.
Triggers: Heat, exertion, fermented foods, stress, autumn in New England, antimicrobial treatments, possibly barometric pressure changes.
Testing: Just observing symptom patterns and response to treatment.
Treatments: Low-histamine diet, low-histamine probiotics, quercetin, bromelain, curcumin, DNRS, cromolyn sodium, digestive enzymes, DGL (licorice), slippery elm, marshmallow.
Most helpful: Diet, quercetin, DNRS (when I keep up with it!), cromolyn sodium (helps crippling abdominal pain but makes other MCAS symptoms flare!), generally looking after myself (stable sleep, stress, temperature, etc.).
Looking forward to comparing notes!
Lyme, bartonella, babesia, mycoplasma, EBV
Mold, MCAS, POTS, CFS/ME, HPA axis
Herbs, AmpCoil, DNRS, diet, nutrients, EOs
Post Edited (saraeli) : 11/6/2019 10:18:23 AM (GMT-7)