running wild said...
Unsightly C. - Totally understand when you mentioned "I've been tested for HIV etc when I was insisting that I had Lyme disease." Still,when I see a new doctor for something, if I mention Lyme, he or she ignores it and asks if I have been tested for HIV. My answer is "Yes, 6 times over the years, and I only needed it once from when I was single. It's Lyme Disease."
That is also ignored, and I am asked if I have been checked for blood cancers. My answer is "Yes, a number of time and have had 2 bone marrow biopsies. It's Lyme Disease." That is also ignored. I know then I am wasting my time with that doctor. And I was suggesting anyone has AIDS. Just a point on how those with it made changes happen. AIDS advocates got a lot done in a short amount of time.
With Lyme, we are usually not sure what is even happening or how to treat.
That's dreadful, imagine being treated for something you don't even have. This is plain irresponsible when you get down to it. Bone marrow as well, that must have smarted, I used to work for the charity, Anthony Nolan donor register here in the UK.
I really hope, with all of this stuff with the Senate, Congress, experimental treatments and all of these news articles yields something good for everyone who has and may suffer with this illness. It's really heartwarming that there are people like Dr J and such, who was even there for the AIDS crisis and such - we need more Drs like him. So much research needs to be done into this illness but of course that could mean big problems for "chronic illnesses" and management of symptoms instead of treating causes.