After struggling to get specific answers, I now believe after piecing all pieces of puzzle together that I have some kind of Lyme infection. I came down with rash on my elbow a year ago- didn't notice a bullseye but it otherwise looked similar to EM rash (tick). I then came down with frozen shoulder in the arm with rash. Then, later on had stiff neck and pressure headaches and a short flu like virus. Itchy arm like I had bugs but no bugs, a tight scalp feeling like my hair was being pulled or yanked. Fast forward few months later after staying in a hot climate area, other strange symptoms began. Had tender gland area that hasn't gone away. My other arm began to hurt, then my quad areas, then soles of feet, everything seemed to feel inflamed shoulders, neck, weight loss, hair loss, weird bubbling popping sensations in calves, abdomen, then pin prick toes (was short lived) then pulsation like feelings in arms, legs, occasional back/side of foot area, etc. - they are more noticeable when still or lying down. Have had a few times of eye floaters but now currently. When I bend down I feel a mild sense of being off kilter, no falls, no tripping or gait issues. All these changes caused me great anxiety, thinking I have a progressive disease. Fast forward to now: well over $5,000 out of pocket appointments, tests and have various results, most recently tested positive for Mycoplasma Pneumoniae and have 6 IgM active/recent positive bands (58,60,64,66,72,93) with band 41 saying indeterminate had some activity. A prior test showed IgG band 18 and IgM band 39 - neither of these showed on this test. Anyhow, just wondering where to go from here. Can't get in w/Lyme Specialist until March. NP goes off of CDC requirements so I'm at a loss, worried and frustrated. No diagnosis of arthritis, ms, lupus or fibromyalgia as my test are normal except my CD57 was low 24. I have not had a brain scan yet. I've been taking tinctures and supplements which might be keeping things at bay but hasn't removed symptoms.
Post Edited (AmyG1973) : 11/14/2019 10:06:18 AM (GMT-7)