Lyme not 'exactly' caused by Borrelia?

@Georgia Hunter, I have low body fat, I appear gaunt and underweight. I am and it's not bc I work at it. I am a bit of a genetic anomaly. I appear anorexic to some, but I'm just unusually petite.

One of my healthcare providers is vegan and she said under no circumstances would I ever recommend that diet for you.

However, I can fast on days doing a liquid broth diet, so long as I eat a light breakfast of lean protein & feel better doing it. But this should not be an everyday thing.

@JovaLyme I have not, but upon your recommendation...I will! Cheers friend, I'm pulling for you!

I remember removing some certain food without doubt had a straight effect on my illness when it started. Especially sugar, i can vividly remember horrible days of ice-pick headaches related to have been eating something containing sugar

ElizKA26 said...
@Georgia Hunter, I have low body fat, I appear gaunt and underweight. I am and it's not bc I work at it. I am a bit of a genetic anomaly. I appear anorexic to some, but I'm just unusually petite.

One of my healthcare providers is vegan and she said under no circumstances would I ever recommend that diet for you.

However, I can fast on days doing a liquid broth diet, so long as I eat a light breakfast of lean protein & feel better doing it. But this should not be an everyday thing.

@JovaLyme I have not, but upon your recommendation...I will! Cheers friend, I'm pulling for you!

Diet is a term meaning "method of eating" and not necessarily calorie restriction. You have potentially two issues, you aren't getting enough calories and/or you have a malabsorption issue. Rau's diet would address both problems. It is very individualized and what you would eat may be entirely different than what I would eat under the exact same plan.

As for diet, I'm extremely thin, and kept losing weight after lyme went away.
Many lyme allergies stopped, but slowly some other food allergies increased with the years.
And so my weight loss continued. It was slow, but sure.
I reached 87 pounds, while my food allergies kept increasing.

I thought: where would I be in 10 years when I have more food allergies / inflammed gut / and less weight?
My future was not bright, and I sincerely feared for my health.

I did fasting (with herbal teas or water) or eating one fruit a day only. It always helped me gain energy, funnily.
Once in the past, fasting alone stopped my lyme symptoms, but as soon as I ate again, some symptoms returned (less strong though).
Fasting was a powerful tool, but with my underweight, I could not do that for more than 10 days.

When I started fearing for my life last year, I decided to give a go on Dr Rau's recommended diet: so I cut all eggs, all milk products (including butter), diminished the amount of proteins drastically (to about 5% of what I used to eat), really, next to nothing.

Then I diminished oils also drastically, no nuts at all, avoided all fruits that had caused me allergies, etc.

I swear that in 4 months, ALL my food allergies DISAPPEARED!
All of them!! I had been suffering from some of these allergies since lyme, about 15 years.

I couldn't eat an apple for about 5 years, no more pineapple, grapes, pomegranate, pears etc. The list was huge.
How could all my food allergies disappear so fast??

So since then, I eat everything back (I mean, fruits), but I sincerely started to FEAR eggs and milk products!!
How could stopping these end all my OTHER food allergies?
I think these foods caused me gut inflammation!!!

I started this diet end of Nov 2018. It's been ONE YEAR without eggs, no milk, no gluten, barely any nuts, low protein (extreme low protein).
And I'm GAINING WEIGHT!!!
I'm 92 pounds now!!

Proteins are harder to digest and sort of hampered my digestion, I feel.
I used to be a protein addict, and now my body sort of rejects proteins.

And despite extreme low fat, low protein diet, I'm gaining weight slowly but surely.
Another great thing is that my mind is so much clearer!

My liver felt totally clogged after lyme, and now I feel it got much lighter again.

I'm not ready to come back to my old diet simply because I can see now that it caused me inflammation.
I'm enjoying a diet full of fruits and veggies, raw and cooked, trying to cut grains, but increasing potatoes.
I do eat some meat once a week or so, more when I go out in restaurants or invite someone to eat home.

It took about 4 months for my brain NOT to feel I was going to die on that low protein, low fat diet, no milk, etc...
4 months!! I felt hungry the whole time at first. Like a withdrawal from addiction. It was hard to change to this diet...

After 6 months I stabilized. No more hunger bouts.
The reason I kept going on, was that I was gaining too many things to let go.

My daughter's depression bouts, anxiety, etc also almost disappeared.
Before we started this diet, I had to pick her from school often, she's got panic attacks, anxiety in ups and down, then in between these, depression, visiting the psychologist etc.
it^s been a year, no more picking her from school, no more shrinks.
I mean, all that due to... diet?!?

I wonder if these foods contribute to some kind of brain inflammation too?
in any way, we're eating like that for almost 1 year now, and not ready to come back to our old diet...

Post Edited (Shasta) : 11/20/2019 1:55:43 PM (GMT-7)

The two test ever patient does with Dr Rau is a stool test and a dental checkup. His clinic is connected to a dental clinic-with 5 dds
For dental he removes all root canals and metal and looks for cavitations.
He told me that was his strongest medicine,

ElizKA, sorry you are in the same boat as I was, too thin, loosing weight.

For me, this diet is working.

I think my body can absorb nutrients better since gut inflammation was reduced - that's the ONLY explanation I can think of.

I reached 87 pounds when I started this diet Nov 18, now I'm 92 pounds.
It was hard, as I was used to eat proteins in high amounts...

My brain got crazy at first, and my liver too: I read that when the liver is full of toxins and pathogens, plus proteins and fats, it has no place for glucose.

Well, it took 4 months to feel my liver was storing glucose again, so that my hunger bouts slowly got better.
After 6 months eating this way, it felt the right diet. That's what I'm still doing now.

Now I can spend 4, even 5 hours without food and I'm fine.

Happy not to have mounting allergies and to be slowly gaining weight I lost after lyme got dormant (I lost very little every year, but never returned to my pre-lyme weight, which was 96 pounds. )

My daughter is also so much better emotionally and energetically, so positive compared to just a year ago, that I can't let her down.

So I'll continue. It's a bit hard, because no one eats like that in society...

I truly now suspect eggs, milk products and heavy meals did bad to us both.

My husband is still eating old style, some cheese, some eggs, more proteins than us, and he feels he's got to fast on and off to keep problems at bay (his case is eczema, gout, some joint pain like arthritis).

With the age, we accumulate more toxins, more problems, I suppose, and before he was super healthy, but now, he feels he needs to fast...

So I do think we found something to keep us going.
I'm 53 and I'm MUCH better than when I was 52, even 50.
We also have friends that are vegans and do hard sports, both daughter and I.
We know these guys are very performative, big muscles, and they do not eat loads of proteins either, so we're sticking to this diet for the moment.

Let's see what the future will tell.
My daughter still has some minor food allergies, but about 85-90% of her fruit allergies also disappeared as fast as mine, in about 4 months.
We're happy to be able to eat lots of fruits, as fruits are a pillar of our diet.

for us, the hardest to cut was gluten. But we've been eating mostly gluten free for about 12 years, I think...
Gluten can be fine if eaten in small amounts, but definitively, every time we re-started, we had to stop later.
So we're not ready to go back to gluten either...

Anyway, I hope you find answers. It's not fun to lose weight....

ElizKA26 said...
Shasta, this makes sense. Maybe about 10 yrs ago I saw a naturopath/kinesiologist that told me to stay away from eggs based on muscle testing.

I went to a medical intuitive and she told me to that proteins were not my friend.

Fast forward to two years ago, I did DNA health testing. I came up that I had a part of gene where I had poor sulfur/ammonia metabolism involving glutathione.

The foods highest in sulfur are eggs, garlic, onions, animal fats, dairy...etc...etc.





I've had poor/borderline diabetes blood tests. I also have had liver, gallbladder, pancreatic pain off and on since the mid 90's. Now it all makes perfect sense.

So last night, I didn't eat dinner. I just had beef bone broth and Jell-O. I woke up feeling rather well. I'm going to try another fast. With just a lean meat and fruit for breakfast and liquid diet throughout the day.

Like, I said I'm in the process of having my fillings removed.

Have not read all these threads.

PLEASE BE SURE TO HAVE AMALGAMS REMOVED BY A IAOMT dentist using the SMART removal technique.

Very important to your heath. Also need to be sure they remove all amalgam specks,..

I would highly recommend you go on Andy Cutler Chelation FB site for guidance.

Even many IAOMT dentist are as much about protecting themselves and disregard amalgams specks.

"Have you ever looked at the Wahls' protocol? She is a doctor who had MS and was in a wheelchair. She has made an almost full recovery, cycles, runs and goodness knows what else after a couple of years and she did it all through diet alone"

However, Ive also read that she also used antibiotics, but covers this up. hmmm.

---

Initial lyme symptoms in late 80's, again with bullseye early 90's. Started ABX 2014, ended in Jan 2016. Flares ended after. Lyme "B gone" as far as I can tell (Cured?). Now: Healing the aftermath-Rebuilding / fine tuning / fixing muscles and still improving nutrition and immune via better gut health. + 20 years of Hashimoto is now improving. Nodule B-gone too.

Astroman, I totally agree. One protocol maybe the polar opposite fit for another.

Girlie said...

astroman said...
"Have you ever looked at the Wahls' protocol? She is a doctor who had MS and was in a wheelchair. She has made an almost full recovery, cycles, runs and goodness knows what else after a couple of years and she did it all through diet alone"

However, Ive also read that she also used antibiotics, but covers this up. hmmm.

Yup - mino

https://www.healingwell.com/community/default.aspx?f=30&m=3895259

I wondered...it sounded too good to be true. I still give some of her's and Rau's methods the benefit of the doubt. But I won't be deviating from my ABX protocol for now if I can help it.

Hi Mark,

I get that. I've looked at the flow chart. You can tell it's designed by an engineer. Awfully user unfriendly and very left brain geared. To me, there is an easier way, but oh well.

The fact that there is protocol, that done incorrectly that is "outright dangerous" scares the living daylights out of me. I have contacted a dentist in my area with credentials you've recommended and going to talk to my LLMD about hair testing.

I most likely will be PMing you. Thanks for your support and info!

If I write a book explaining what chronic Lyme is, would you all buy it and read it?