Eliza, I responded in the other thread where you asked about small fiber neuropathy, and then I saw this!
This sounds exactly exactly exactly like POTS/dysautonomia. And I can assume since you asked about small fiber neuropathy that you have nerve pain too.
This is classic, classic autoimmune dysautonomia. What happens is that your body attacks your peripheral nerves, both the sensory nerves (that feel pain, hence burning) and the autonomic nerves (that control things like blood pressure circulation and digestion, hence the dysautonomia symptoms).
There are other causes for this type of autoimmune dysautonomia, but its seen often in Lyme.
That's very, very helpful. Thank you for that. I suspected it was either MCAS or as you mentioned autoimmune - I know it's autoimmune now. I'm hoping now then that the disulfiram takes care of the bacteria then. Considering that it hits persistors and normal forms and seems to starve it some way that antibiotics can't, I am hopeful for some improvements soon. I have serious issues with digestion, dry skin and everything else.
Oh my thyroid is overactive too but there's no way I'm letting them give me radio iodine when it might make things worse if I don't treat the infection that's the cause.
The issues started after taking L-theanine which caused tingling in my nose and face as well as on my chest. I think I've finally figured it out and you put the last piece of the puzzle there.
-Isaiah 54:17 No weapon formed against you shall prosper
-Jeremiah 29:11 I know the plans I have for you, plans to prosper you and not to harm
you, plans to give you hope and a future