There is one saying:
"Upon seeing the back of others, i see mine..."
Stay away from DSF, its a shoot in the dark...
Thats all i can say..
I wouldn't necessarily agree with that.
Disulfiram is clearly working very well for quite a lot of people. Unfortunately, like any pharmaceutical medication, it comes with side effects that will affect some but not others. We've seen both sides of the story in this thread, which is good because anyone considering it needs to have as much information as possible before they consider trying what is still an experimental treatment for Lyme.
I would hate to see anyone suffer the way Rainy, Cignet and myself have. I'm still deeply worried about
both of them. They have both disappeared in the last few days after being two of the most prolific and helpful contributors to this thread in particular. Cignet is struggling badly in general and Rainy is now clearly in a very bad way. This should serve as a warning that disulfiram does come with some potentially serious side effects.
This thread is a general discussion about
disulfiram, but in the past few days it has looked more like "The Disulfiram Appreciation Society" and the people who have suffered the very serious side effects of this drug have been attacked quite personally and blamed for what disulfiram has done to them. It's as if people refuse to believe that this medication could possibly cause the side effects it is known to cause despite one of then ending up in the ER and all 3 of them ending up with suicidal ideation and other psychological problems.
I really hope Cignet and Rainy are OK. It feels like they have been bullied off the forum because they have had a negative experience and the disulfiram fanboys clearly don't like it. The hysteria over this medication is bizarre. Yes, it clearly is helping people, but it's incredibly sad that those who have had a bad experience are being blamed for what disulfiram has done to them. Talk about
kicking people while they are down.
It's looking like disulfiram is going to be a very helpful treatment for Lyme and the results of the official clinical trial can't come soon enough as far as I am concerned. We will all be a lot better off when this has been properly trialled, researched and understood as a potential Lyme treatment. We need much more information about
how it works against Lyme infections and who should or shouldn't take it.
This thread should be telling both sides of the story and should also serve as warning to those self-treating with medication bought online. One thing that no one seems to be taking into account is the possibility that the disulfiram myself, Cignet and Rainy obtained online could potentially be a "not-quite-legitimate" version of this medication. Let's face it, we have absolutely no idea where this came from or whether it is legitimate. It could be that a reputable version of Antabuse obtained from a UK or US pharmacy wouldn't have done this to the three of us here. This highlights once again the failings of conventional medicine to help so many Lyme sufferers and the danger of the position they are being put in by trying to treat themselves with medication bought online.
That's a valid point Jova about
getting it from a pharmacy vs bought online. Who knows the difference in the efficacy and approved cutting methods.
Cyg and Rainy, I hope you're both okay. Please post when you get the chance, we are worried and hope for the best.