Posted 12/14/2019 4:44 PM (GMT -6)
If we are not sick of just one bacteria, why do we need to call this disease lyme disease?
Yes, this is very similar to Georgia's post, about the whys...
Sorry if this is repetitive, but in Georgia's post, some people keep talking about how they are sure they have lyme because they have DNA from Bb.
That's why I decided to post about it.
There's still another post about Post Lyme Disease treatment, where the doctor speaks about CFS, describing almost exactly some of the cases of lyme - crushing fatigue, horrible post exertional fatigue, cognitive exhaustion, unrefreshing sleep, orthostatic intolerance, NK dysfunction, immune system dysfunction, neuro inflammation, etc...
He did not mention lyme, only CFS.
I do think that there may be only different shades of diseases that mingle up more and more.
And we call lyme something that should not have that name - because other diseases such as many autoimmune diseases, CFS, chronic EBV, chronic infections of any type (chronic mycoplasma, chronic TB, chronic bartonella, chronic brucella, etc) look very much the same as what we know as lyme.
The fact that we call it lyme disease, and the definition of lyme has Bb at the center of all problems, is what bothers me, I think.
Same as that professor discussing CFS, the name is wrong he said...
And that CFS usually comes after an infectious disease, for the majority of cases...
they are not sure which infection may cause CFS though.
Well, many 'lyme' sufferers 'have CFS' anyway.... The label does not fit either.
Or MS, you can have lyme, MS, CFS and autoimmune conditions all at the same time, right?
Yes, when I was posting I think under my other alias Jinna, I kept saying dr. Klingh treated all patients the same way: meaning that he treated autism, ADD disorders, behavioural problems, psycho diseases, lyme, CFS, EBV, neuro disorders, cancer, etc all the same way, or in very similar ways, making little distinction.
It was way too early to have said that here, I think, no one understood that back then.
But today, I do think dr K. had been somehow right the whole time.
Recently, I posted about Dr Rau saying there is no lyme disease, in fact... because it's not the bacteria causing the symptoms, but a body that falls ill with Bb is a sick body from start, sick at the cellular level.
Only then, Bb gets dangerous.
That would go for EBV, HHV-6, if any of it goes chronic or any chronic infectious diseases too, I think.
Dr Rau said: yes, not everyone goes chronic after an infected tick bite, only a small percentage becomes a long term chronic sufferer, because their cells are sicker, more toxic, etc.
The idea is that a healthy body, healthy cells would easily fight Bb and other pathogens, possibly not falling into the auto-immune label either.
It's exactly the same for mononucleosis: some people heal, some relapse, some never lift from CFS for years, decades.
The fact that antimicrobials help many autoimmune conditions also makes me wonder about this label too...
How precise is this label if many patients react positively to antimicrobials, even reversing their autoimmune diseases?
How can killing microbes cure the so called autoimmune diseases, in some cases?
The theory of auto-immune does feel like not explaining much either...
In my opinion, the name lyme linked to Bb is far from precise, it lures people to think they are sick due to Bb, and MAINLY Bb.
Once you consider yourself 'sick with lyme', your aim will be to get rid of Bb (if that was possible).
Guys that have recovered from serious lyme disease usually treated their whole bodies, their immune system, diet, multiple types of pathogens, etc, meaning, they treated much more than Bb.
Many will go into autoimmune, MCAD even, after lyme treatment (or still during lyme treatment)...
What about if all this was still the same disease?!? Meaning, the body is ill at the cellular level, the immune system has a dysfunction, and then people fall ill with infectious diseases AND inflammatory diseases...
If that was accepted, treatment of these diseases would look very similar, the way Dr K says they are similar, the way Dr Rau says they are similar... There wouldn't be something then called 'lyme disease', if you see what I mean.
Look at me: I'm 'cured' from lyme, the lyme I knew as lyme - bullseye rash, horrible arthritic pains, heart symptoms, hormonal imbalance, psycho symptoms, air hunger, night sweats, sole rash / redness, eye floaters, extreme tinnitus, extreme CFS, extreme electrosmog sensitivity, extreme brain fog, dementia symptoms (almost zero short term memory), inability to taste foods etc.
All these symptoms are long gone, certainly 10 years without any of that.
What have I got AFTER 'lyme' went dormant?
I got small joint pains, very light, that do not react with Buhner's herbs against lyme.
They do not grow fast either.
I got slow development of food allergies (not as mad and fast as during active lyme, but slowly growing).
I continued suffering from Raynauds, chilblains, some gut problems - but nothing like during lyme.
The tinnitus is still here, very low, but certainly here.
Well, now I'm better again - after cutting eggs, milk products, gluten, and some other things from my diet, 100%.
I keep reading people cured from lyme then they go full MCAS!!!
It could have been me, I'm sure. That's why I keep on my strict diet now.
No more food allergies since I cut these products out, for good.
I do see a continuation from the time lyme was active - meaning, my body was full with active infections, clearly - to after lyme went dormant - meaning, all these active infections symptoms disappeared 100%, but small other dysfunctions start to grow, slowly but surely...
They became life threatening in my case, only about 9 years after active lyme symptoms disappeared.
Why life threatening? Because I lost weight, little by little, due to mounting allergies, and I wondered if I would be still here 10 years into the future. I guess not, if I hadn't changed my diet (to conform to dr Rau's advice).
anyway, I keep saying I don't have lyme anymore, nor my daughter, but what I mean with that, is simply that those active symptoms aren't with me any longer. But I'm still working to improve my immune system.