RW - the chemo is to ablate the immune system. The idea is that first they harvest your stems cells, then you destroy all of the autotoxic immune cells with chemo, thereby erasing their memory. They then inject your stem cells back into you, and they turn into WBC RBC and plateletes thereby repopulating your body with a healthy immune system.
Its not a procedure for the feint of heart. I'm going to give IVIG some more time and do it my rheumatologists way for a little while longer, maybe try rituxin and the gabapentin he wants to try, so that I know i've exhausted all my options before doing something so drastic. But I really feel at some point, assuming my immune system doesnt calm down, that I will go ahead with this.
I've had my lyme numbers run every which way, by a bunch of different labs. The co-infections come back clean every time. The lyme comes back with zero IgM bands, and 3 IgG usually. My elisa is negative. So is my c6 peptide. I do not really have any symptoms that can be considered lyme specific that cant be explained by my AI disease. The IgG bands typically last for life, and like Dr K says, every one of us has probably had exposure to lyme at some point. That does not mean I still have an active infection, there is just zero evidence, and I did not respond to antibiotics. He thinks its an autoimmune issue at this point and needs to be treated as such. Abx/killing lyme is secondary, although he thinks its possible there are residual spirochetes exciting the immune system in the background. In my opinion, its not even clear lyme casued mine. It could have been the strep throat or the food poisoning I had, or the years of flu shots and vaccines. All of these are known to stimulate the immune system and put it on high alert
, thereby creating post-infectious neurological autoimmune disorders.
Post Edited (dcd2103) : 5/1/2020 5:45:48 AM (GMT-6)